Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey)
Introduction The number of out-of-hospital cardiac arrest (OHCA) survivors is increasing. However, there remains limited knowledge on the long-term physical and psychological problems suffered by survivors and their relatives. The aims of the DANCAS (DANish cardiac arrest survivorship) survey are to...
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doaj-0ed0d82862d9457fa01a9c9a3804ee632021-07-23T15:00:38ZengBMJ Publishing GroupBMJ Open2044-60552021-04-0111410.1136/bmjopen-2020-045668Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey)Rod S Taylor0Britt Borregaard1Ann Dorthe Zwisler2Jørgen Feldbæk Nielsen3Vicky L Joshi4Lars H Tang5Line Zinckernagel6Tina Broby Mikkelsen7Sofie Raahauge Christiansen8MRC/CSO Social and Public Health Sciences Unit & Robertson Centre for Biostatistics, Institute of Health and Well Being, University of Glasgow, Glasgow, UKDepartment of Cardiology, Odense University Hospital, Odense, DenmarkREHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Odense, DenmarkHammel Neurorehabilitation Centre and University Research Clinic, Aarhus, DenmarkREHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Odense, DenmarkDepartment of Physiotherapy and Occupational Therapy, Næstved-Slagelse-Ringsted Hospitals, Slagelse, DenmarkREHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Odense, DenmarkREHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Odense, DenmarkREHPA, Danish Knowledge Centre for Rehabilitation and Palliative Care, Odense University Hospital, Odense, DenmarkIntroduction The number of out-of-hospital cardiac arrest (OHCA) survivors is increasing. However, there remains limited knowledge on the long-term physical and psychological problems suffered by survivors and their relatives. The aims of the DANCAS (DANish cardiac arrest survivorship) survey are to describe the prevalence of physical and psychological problems, identify predictors associated with suffering them and to determine unmet rehabilitation needs in order to make recommendations on the timing and content of future rehabilitation interventions.Methods and analysis The DANCAS survey has a cross-sectional design involving a survey of OHCA survivors and their relatives. OHCA survivors will be identified through the Danish Cardiac Arrest Registry as having suffered an OHCA between 1 January 2016 and 31 December 2019. Each survivor will be asked to identify their closest relative to complete the relatives’ survey. Contents of survivor survey: EQ-5D-5Level, Hospital Anxiety and Depression Scale, Two Simple Questions, Modified Fatigue Impact Scale, 12-item WHO Disability Assessment Scale 2.0, plus questions on unmet rehabilitation and information needs. Contents of relatives’ survey: World Health Organisation-Five Well-Being Index, Hospital Anxiety and Depression Scale, Informant Questionnaire on Cognitive Decline in the Elderly—Cardiac Arrest and the Modified Caregiver Strain Index. Self-report outcome data collected through the surveys will be enriched by data from Danish national registries including demographic characteristics, circumstances of cardiac arrest and comorbidities. The survey will be completed either electronically or by post December 2020–February 2021.Ethics and dissemination The study will be conducted in accordance with the Declaration of Helsinki. Surveys and registry-based research studies do not normally require ethical approval in Denmark. This has been confirmed for this study by the Region of Southern Denmark ethics committee (20192000-19). Results of the study will be disseminated via several peer-reviewed publications and will be presented at national and international conferences.https://bmjopen.bmj.com/content/11/4/e045668.full |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Rod S Taylor Britt Borregaard Ann Dorthe Zwisler Jørgen Feldbæk Nielsen Vicky L Joshi Lars H Tang Line Zinckernagel Tina Broby Mikkelsen Sofie Raahauge Christiansen |
spellingShingle |
Rod S Taylor Britt Borregaard Ann Dorthe Zwisler Jørgen Feldbæk Nielsen Vicky L Joshi Lars H Tang Line Zinckernagel Tina Broby Mikkelsen Sofie Raahauge Christiansen Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) BMJ Open |
author_facet |
Rod S Taylor Britt Borregaard Ann Dorthe Zwisler Jørgen Feldbæk Nielsen Vicky L Joshi Lars H Tang Line Zinckernagel Tina Broby Mikkelsen Sofie Raahauge Christiansen |
author_sort |
Rod S Taylor |
title |
Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) |
title_short |
Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) |
title_full |
Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) |
title_fullStr |
Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) |
title_full_unstemmed |
Long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the DANCAS survey) |
title_sort |
long-term physical and psychological outcomes after out-of-hospital cardiac arrest—protocol for a national cross-sectional survey of survivors and their relatives (the dancas survey) |
publisher |
BMJ Publishing Group |
series |
BMJ Open |
issn |
2044-6055 |
publishDate |
2021-04-01 |
description |
Introduction The number of out-of-hospital cardiac arrest (OHCA) survivors is increasing. However, there remains limited knowledge on the long-term physical and psychological problems suffered by survivors and their relatives. The aims of the DANCAS (DANish cardiac arrest survivorship) survey are to describe the prevalence of physical and psychological problems, identify predictors associated with suffering them and to determine unmet rehabilitation needs in order to make recommendations on the timing and content of future rehabilitation interventions.Methods and analysis The DANCAS survey has a cross-sectional design involving a survey of OHCA survivors and their relatives. OHCA survivors will be identified through the Danish Cardiac Arrest Registry as having suffered an OHCA between 1 January 2016 and 31 December 2019. Each survivor will be asked to identify their closest relative to complete the relatives’ survey. Contents of survivor survey: EQ-5D-5Level, Hospital Anxiety and Depression Scale, Two Simple Questions, Modified Fatigue Impact Scale, 12-item WHO Disability Assessment Scale 2.0, plus questions on unmet rehabilitation and information needs. Contents of relatives’ survey: World Health Organisation-Five Well-Being Index, Hospital Anxiety and Depression Scale, Informant Questionnaire on Cognitive Decline in the Elderly—Cardiac Arrest and the Modified Caregiver Strain Index. Self-report outcome data collected through the surveys will be enriched by data from Danish national registries including demographic characteristics, circumstances of cardiac arrest and comorbidities. The survey will be completed either electronically or by post December 2020–February 2021.Ethics and dissemination The study will be conducted in accordance with the Declaration of Helsinki. Surveys and registry-based research studies do not normally require ethical approval in Denmark. This has been confirmed for this study by the Region of Southern Denmark ethics committee (20192000-19). Results of the study will be disseminated via several peer-reviewed publications and will be presented at national and international conferences. |
url |
https://bmjopen.bmj.com/content/11/4/e045668.full |
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