Use of Implantable Venous Port Systems in the Treatment of Children with Orphan Diseases (Mucopolysaccharidosis and Pompe Disease): Case Series
Many orphan diseases in children require life-long and regular intravenous enzyme replacement therapy. The article describes the first Russian practice of implanting venous port systems in 12 patients with type I and II mucopolysaccharidosis and Pompe disease (6 months to 17 years old) to create lon...
Main Authors: | M. Yu. Rykov, I. V. Filinov, E. I. Petrov, N. D. Vashakmadze, A. K. Gevorkyan, E. N. Arkhipova, I. V. Sil’nova, E. N. Basargina, N. V. Buchinskaya, A. I. Ivanov, E. A. Isupova, M. M. Kostik, N. A. Abramova, O. V. Kalashnikova, V. G. Chasnyk, A. E. Aleksandrov, D. A. Morozov, V. G. Polyakov |
---|---|
Format: | Article |
Language: | English |
Published: |
"Paediatrician" Publishers LLC
2015-09-01
|
Series: | Voprosy Sovremennoj Pediatrii |
Subjects: | |
Online Access: | https://vsp.spr-journal.ru/jour/article/view/1198 |
Similar Items
-
MODERN APPROACHES TO THERAPY FOR CHILDREN WITH MUCOPOLYSACCHARIDOSIS
by: N. V. Buchinskaya, et al.
Published: (2014-05-01) -
Airway Abnormalities in Adult Mucopolysaccharidosis and Development of Salford Mucopolysaccharidosis Airway Score
by: Chaitanya Gadepalli, et al.
Published: (2021-07-01) -
Newborn Screening for Mucopolysaccharidosis I: Moving Forward Learning from Experience
by: Lorne A. Clarke, et al.
Published: (2020-11-01) -
Risk factors for venous thromboses in patients with rheumatoid arthritis
by: M. A. Satybaldyeva, et al.
Published: (2019-01-01) -
Risk factors for venous thromboembolic events in patients with rheumatoid arthritis
by: M. A. Satybaldyeva, et al.
Published: (2016-10-01)