Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved]
Background: Type 1 diabetes (T1D) is an auto-immune condition which requires intensive self-management. Diabetes self-management is challenging, especially during young adulthood. Effective interventions to improve outcomes for young adults (18-30 year olds) with T1D are needed. This paper describes...
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doaj-4059846d1aa743fe9ecb6807653b804f2020-11-25T04:06:05ZengF1000 Research LtdHRB Open Research2515-48262018-08-01110.12688/hrbopenres.12803.213926Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved]Deirdre M.J. Walsh0Lisa Hynes1Mary Clare O'Hara2Jenny Mc Sharry3D1 Now Young Adult PanelSéan F. Dinneen4Molly Byrne5Health Behaviour Change Research Group, School of Psychology, National University of Ireland, Galway, Galway, H91 EV56, IrelandSPLAT (Pediatric Lab for Adherence and Transition), West Virginia University, Morgantown, WV, 26506, USAResearch and Development, Strategic Planning and Transformation, Health Service Executive, Dublin 8, D08 W2A8, IrelandHealth Behaviour Change Research Group, School of Psychology, National University of Ireland, Galway, Galway, H91 EV56, IrelandSchool of Medicine, National University of Ireland, Galway, Galway, H91 V4AY, IrelandHealth Behaviour Change Research Group, School of Psychology, National University of Ireland, Galway, Galway, H91 EV56, IrelandBackground: Type 1 diabetes (T1D) is an auto-immune condition which requires intensive self-management. Diabetes self-management is challenging, especially during young adulthood. Effective interventions to improve outcomes for young adults (18-30 year olds) with T1D are needed. This paper describes the development of the D1 Now intervention, employing a user-centred approach to engage with stakeholders in parallel with the application of theory. Methods: Intervention development consisted of 4 phases: 1) the formation of a public and patient involvement (PPI) Young Adult Panel (YAP); 2) a systematic review to synthesise evidence regarding the effectiveness of interventions aimed at improving outcomes for young adults with T1D; 3) understand young adults’ diabetes self-management behaviour through engagement with key stakeholders; and 4) an expert consensus meeting to discuss self-management strategies identified in Phase 1 and 3 that would form the core components of the D1 Now intervention. Results: The YAP resulted in meaningful involvement between young adults, researchers and service providers. The systematic review highlighted a lack of quality intervention studies. Qualitative findings highlighted how young adult self-management is driven by complex interactions between external resources, which influence capability, and motivation. The expert panel in Phase 4 highlighted focus areas to improve outcomes for young adults and implementation strategies. Subsequent to these 4 phases, 3 intervention components have been identified: 1) a key worker to liaise with the young adult; 2) an online portal to facilitate relationship building between staff and young adults; and 3) an agenda setting tool to facilitate joint decision-making. Conclusions: This study described the systematic development of an intervention underpinned by theoretical frameworks and PPI, and has identified components for the D1 Now intervention. The resulting intervention content will now be subject to an intervention optimisation process.https://hrbopenresearch.org/articles/1-8/v2 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Deirdre M.J. Walsh Lisa Hynes Mary Clare O'Hara Jenny Mc Sharry D1 Now Young Adult Panel Séan F. Dinneen Molly Byrne |
spellingShingle |
Deirdre M.J. Walsh Lisa Hynes Mary Clare O'Hara Jenny Mc Sharry D1 Now Young Adult Panel Séan F. Dinneen Molly Byrne Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] HRB Open Research |
author_facet |
Deirdre M.J. Walsh Lisa Hynes Mary Clare O'Hara Jenny Mc Sharry D1 Now Young Adult Panel Séan F. Dinneen Molly Byrne |
author_sort |
Deirdre M.J. Walsh |
title |
Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] |
title_short |
Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] |
title_full |
Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] |
title_fullStr |
Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] |
title_full_unstemmed |
Embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: The D1 Now Study [version 2; peer review: 2 approved] |
title_sort |
embedding a user-centred approach in the development of complex behaviour change intervention to improve outcomes for young adults living with type 1 diabetes: the d1 now study [version 2; peer review: 2 approved] |
publisher |
F1000 Research Ltd |
series |
HRB Open Research |
issn |
2515-4826 |
publishDate |
2018-08-01 |
description |
Background: Type 1 diabetes (T1D) is an auto-immune condition which requires intensive self-management. Diabetes self-management is challenging, especially during young adulthood. Effective interventions to improve outcomes for young adults (18-30 year olds) with T1D are needed. This paper describes the development of the D1 Now intervention, employing a user-centred approach to engage with stakeholders in parallel with the application of theory. Methods: Intervention development consisted of 4 phases: 1) the formation of a public and patient involvement (PPI) Young Adult Panel (YAP); 2) a systematic review to synthesise evidence regarding the effectiveness of interventions aimed at improving outcomes for young adults with T1D; 3) understand young adults’ diabetes self-management behaviour through engagement with key stakeholders; and 4) an expert consensus meeting to discuss self-management strategies identified in Phase 1 and 3 that would form the core components of the D1 Now intervention. Results: The YAP resulted in meaningful involvement between young adults, researchers and service providers. The systematic review highlighted a lack of quality intervention studies. Qualitative findings highlighted how young adult self-management is driven by complex interactions between external resources, which influence capability, and motivation. The expert panel in Phase 4 highlighted focus areas to improve outcomes for young adults and implementation strategies. Subsequent to these 4 phases, 3 intervention components have been identified: 1) a key worker to liaise with the young adult; 2) an online portal to facilitate relationship building between staff and young adults; and 3) an agenda setting tool to facilitate joint decision-making. Conclusions: This study described the systematic development of an intervention underpinned by theoretical frameworks and PPI, and has identified components for the D1 Now intervention. The resulting intervention content will now be subject to an intervention optimisation process. |
url |
https://hrbopenresearch.org/articles/1-8/v2 |
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