The financial and time burden associated with phenylketonuria treatment in the United States

Background: Phenylketonuria (PKU) imposes a substantial burden on people living with the condition and their families. However, little is known about the time cost and financial burden of having PKU or caring for a child with the condition. Methods and findings: Primary data were collected with a de...

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Bibliographic Details
Main Authors: Angela M. Rose, Scott D. Grosse, Sandra P. Garcia, Janice Bach, Mary Kleyn, Norma-Jean E. Simon, Lisa A. Prosser
Format: Article
Language:English
Published: Elsevier 2019-12-01
Series:Molecular Genetics and Metabolism Reports
Online Access:http://www.sciencedirect.com/science/article/pii/S2214426919301612