The financial and time burden associated with phenylketonuria treatment in the United States
Background: Phenylketonuria (PKU) imposes a substantial burden on people living with the condition and their families. However, little is known about the time cost and financial burden of having PKU or caring for a child with the condition. Methods and findings: Primary data were collected with a de...
Main Authors: | Angela M. Rose, Scott D. Grosse, Sandra P. Garcia, Janice Bach, Mary Kleyn, Norma-Jean E. Simon, Lisa A. Prosser |
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Format: | Article |
Language: | English |
Published: |
Elsevier
2019-12-01
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Series: | Molecular Genetics and Metabolism Reports |
Online Access: | http://www.sciencedirect.com/science/article/pii/S2214426919301612 |
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