Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations]
Community and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities inv...
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doaj-4462fbddbcf84f60a79cf39ce0eb3e362021-04-19T15:06:24ZengF1000 Research LtdAAS Open Research2515-93212021-03-01410.12688/aasopenres.13081.114177Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations]Godfred Agongo0Cornelius Debpuur1Lucas Amenga-Etego2Engelbert A. Nonterah3Michael B. Kaburise4Abraham Oduro5Michele Ramsay6Paulina Tindana7Navrongo Health Research Centre, Navrongo, GhanaNavrongo Health Research Centre, Navrongo, GhanaWest African Centre for Cell Biology and Infectious Pathogens, Department of Biochemistry, University of Ghana, Accra, GhanaNavrongo Health Research Centre, Navrongo, GhanaNavrongo Health Research Centre, Navrongo, GhanaNavrongo Health Research Centre, Navrongo, GhanaSydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of Witswatersrand, Johannesburg, South AfricaHealth Policy, Plannng and Management, School of Public Health, College of Health Sciences, University of Ghana, Legon/Accra, GhanaCommunity and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities involved in genomics research. However, not much has been documented on how research teams, particularly in international collaborative research projects, are navigating the complex process of engagement including the return of key research findings. This paper is part of a series of papers describing the CE processes used in the AWI-Gen study sites. We describe the key processes of engagement, challenges encountered and the major lessons learned. We pay particular attention to the experiences in returning research results to participants and communities within the Demographic and Health Surveillance site in northern Ghana.https://aasopenresearch.org/articles/4-15/v1 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Godfred Agongo Cornelius Debpuur Lucas Amenga-Etego Engelbert A. Nonterah Michael B. Kaburise Abraham Oduro Michele Ramsay Paulina Tindana |
spellingShingle |
Godfred Agongo Cornelius Debpuur Lucas Amenga-Etego Engelbert A. Nonterah Michael B. Kaburise Abraham Oduro Michele Ramsay Paulina Tindana Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] AAS Open Research |
author_facet |
Godfred Agongo Cornelius Debpuur Lucas Amenga-Etego Engelbert A. Nonterah Michael B. Kaburise Abraham Oduro Michele Ramsay Paulina Tindana |
author_sort |
Godfred Agongo |
title |
Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
title_short |
Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
title_full |
Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
title_fullStr |
Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
title_full_unstemmed |
Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
title_sort |
community engagement and feedback of results in the h3africa awi-gen project: experiences from the navrongo demographic and health surveillance site in northern ghana [version 1; peer review: 1 approved, 2 approved with reservations] |
publisher |
F1000 Research Ltd |
series |
AAS Open Research |
issn |
2515-9321 |
publishDate |
2021-03-01 |
description |
Community and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities involved in genomics research. However, not much has been documented on how research teams, particularly in international collaborative research projects, are navigating the complex process of engagement including the return of key research findings. This paper is part of a series of papers describing the CE processes used in the AWI-Gen study sites. We describe the key processes of engagement, challenges encountered and the major lessons learned. We pay particular attention to the experiences in returning research results to participants and communities within the Demographic and Health Surveillance site in northern Ghana. |
url |
https://aasopenresearch.org/articles/4-15/v1 |
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