Wheeled mobility: the perception of parents of children with cerebral palsy

Children with cerebral palsy (CP) often use mobility devices as facilitators of their functionality and independence, and these devices may have a positive impact on their caregivers’ quality of life. Considering a family-centered approach, parents assume a decisive role in different stages of the t...

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Main Authors: Mariana Volpini, Marina de Brito Brandão, Lívia Álvares Rabelo Pereira, Marisa Cotta Mancini, Marcella Guimarães Assis
Format: Article
Language:English
Published: Universidade Federal de São Carlos 2013-12-01
Series:Cadernos de Terapia Ocupacional
Subjects:
Online Access:http://doi.editoracubo.com.br/10.4322/cto.2013.049
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spelling doaj-479fe452da17412486956de76c82e4a32020-11-24T23:06:06ZengUniversidade Federal de São CarlosCadernos de Terapia Ocupacional2238-28600104-49312013-12-01210347147810.4322/cto.2013.049Wheeled mobility: the perception of parents of children with cerebral palsyMariana Volpini 0 Marina de Brito Brandão1 Lívia Álvares Rabelo Pereira 2 Marisa Cotta Mancini3Marcella Guimarães Assis4Universidade Federal de Minas Gerais – UFMGFaculdade de Ciências Médicas de Minas Gerais e da Fundação Mineira de Educação e Cultura – Universidade FUMECFundação Mineira de Educação e Cultura – Universidade FUMEC, Universidade Federal de Minas Gerais – UFMG, Universidade Federal de Minas Gerais – UFMGChildren with cerebral palsy (CP) often use mobility devices as facilitators of their functionality and independence, and these devices may have a positive impact on their caregivers’ quality of life. Considering a family-centered approach, parents assume a decisive role in different stages of the therapeutic process, guiding several actions of the rehabilitation professionals during the search, development and/or adaptation of equipment that meet the specific needs of customers. The aim of this research was to understand the perceptions of parents of children with CP on the use of the wheelchair in the daily routines of their children. This qualitative study used semi-structured interviews with 16 parents of CP children who were wheelchair users assisted at ‘Associação Mineira de Reabilitação’. Content analysis grounded the categorization of themes that emerged from the interviews. The results expressed in themes such as “The look on the daily routine” and “The look on the equipment” pointed out characteristics related to the benefits of the use of the wheelchair in promoting child participation at home, at school, and in community environments, as well as different features of wheelchairs that facilitate or hamper their use in children’s daily routine. http://doi.editoracubo.com.br/10.4322/cto.2013.049WheelchairsDaily RoutineCerebral PalsyAssistive Technology.
collection DOAJ
language English
format Article
sources DOAJ
author Mariana Volpini
Marina de Brito Brandão
Lívia Álvares Rabelo Pereira
Marisa Cotta Mancini
Marcella Guimarães Assis
spellingShingle Mariana Volpini
Marina de Brito Brandão
Lívia Álvares Rabelo Pereira
Marisa Cotta Mancini
Marcella Guimarães Assis
Wheeled mobility: the perception of parents of children with cerebral palsy
Cadernos de Terapia Ocupacional
Wheelchairs
Daily Routine
Cerebral Palsy
Assistive Technology.
author_facet Mariana Volpini
Marina de Brito Brandão
Lívia Álvares Rabelo Pereira
Marisa Cotta Mancini
Marcella Guimarães Assis
author_sort Mariana Volpini
title Wheeled mobility: the perception of parents of children with cerebral palsy
title_short Wheeled mobility: the perception of parents of children with cerebral palsy
title_full Wheeled mobility: the perception of parents of children with cerebral palsy
title_fullStr Wheeled mobility: the perception of parents of children with cerebral palsy
title_full_unstemmed Wheeled mobility: the perception of parents of children with cerebral palsy
title_sort wheeled mobility: the perception of parents of children with cerebral palsy
publisher Universidade Federal de São Carlos
series Cadernos de Terapia Ocupacional
issn 2238-2860
0104-4931
publishDate 2013-12-01
description Children with cerebral palsy (CP) often use mobility devices as facilitators of their functionality and independence, and these devices may have a positive impact on their caregivers’ quality of life. Considering a family-centered approach, parents assume a decisive role in different stages of the therapeutic process, guiding several actions of the rehabilitation professionals during the search, development and/or adaptation of equipment that meet the specific needs of customers. The aim of this research was to understand the perceptions of parents of children with CP on the use of the wheelchair in the daily routines of their children. This qualitative study used semi-structured interviews with 16 parents of CP children who were wheelchair users assisted at ‘Associação Mineira de Reabilitação’. Content analysis grounded the categorization of themes that emerged from the interviews. The results expressed in themes such as “The look on the daily routine” and “The look on the equipment” pointed out characteristics related to the benefits of the use of the wheelchair in promoting child participation at home, at school, and in community environments, as well as different features of wheelchairs that facilitate or hamper their use in children’s daily routine.
topic Wheelchairs
Daily Routine
Cerebral Palsy
Assistive Technology.
url http://doi.editoracubo.com.br/10.4322/cto.2013.049
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