Balancing the local and the universal in maintaining ethical access to a genomics biobank
Abstract Background Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasin...
Main Authors: | Catherine Heeney, Shona M. Kerr |
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Format: | Article |
Language: | English |
Published: |
BMC
2017-12-01
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Series: | BMC Medical Ethics |
Subjects: | |
Online Access: | http://link.springer.com/article/10.1186/s12910-017-0240-7 |
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