Validity and reliability of the Korean version of the pediatric quality of life ESRD module

• Main Authors: Park Ki-Soo, Cho Min, Ha Il, Kang Hee, Cheong Hae, Park Young, Lee Yoon, Lee Joo, Cho Hee
• Format: Article
• Language: English
• Published: BMC 2012-06-01
• Series: Health and Quality of Life Outcomes
• Subjects: Quality of life; Children; End-stage renal disease
• Online Access: http://www.hqlo.com/content/10/1/59

<p>Abstract</p> <p>Background</p> <p>Health-related quality of life is a very important issue in children with end-stage renal disease and their family. Moreover, this can be a lifelong problem. In this study, we performed a cross-sectional investigation of the health-related quality of life in Korean children, undergoing renal replacement therapies, such as dialysis and renal transplantation.</p> <p>Findings</p> <p>We validated the Korean version of the PedsQL 3.0 End-Stage Renal Disease Module by comparing with the PedsQL 4.0 Generic Core Scales. A total of 92 pediatric patients with end-stage renal disease, aged 2–18 year old, were enrolled in four teaching hospitals in Korea. The module was acceptable for both parent proxy-report and child self-report. The response rate was acceptable, since no reminders were delivered. A large proportion of the responders answered >90% of the items, which suggests a good face validity. The PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 End-Stage Renal Disease Module showed minimal missing values in the current study, which supported feasibility. The validation analyses revealed acceptable floor and ceiling effects and an acceptable construct validity.</p> <p>Conclusions</p> <p>The PedsQL 3.0 End-stage Renal Disease Module may be useful as an end-stage renal disease -specific instrument in the evaluation of the health-related quality of life in Korean children; however, a larger, longitudinal prospective study is needed.</p>