Collecting clinical data in primary ciliary dyskinesia- challenges and opportunities [version 2; referees: 2 approved]

Collecting clinical data in primary ciliary dyskinesia- challenges and opportunities [version 2; referees: 2 approved]

Rationale: Primary ciliary dyskinesia (PCD) is under diagnosed and underestimated. Most clinical research has used some form of questionnaires to capture data but none has been critically evaluated particularly with respect to its end-user feasibility and utility. Objective: To critically appraise a...

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Main Authors: Israel Amirav, Mary Roduta Roberts, Huda Mussaffi, Avigdor Mandelberg, Yehudah Roth, Revital Abitbul, Anthony Luder, Hannah Blau, Soliman Alkrinawi, Micha Aviram, Marta Ben-Ami, Moshe Rotschild, Lea Bentur, David Shoseyov, Malena Cohen-Cymberknoh, Eitan Kerem, Avraham Avital, Chaim Springer, Avigdor Hevroni, Husein Dabbah, Arnon Elizur, Elie Picard, Shmuel Goldberg, Joseph Rivlin, Galit Livnat, Moran Lavie, Nael Alias, Ruth Soferman, Heike Olbrich, Johanna Raidt, Julia Wallmeier, Claudius Werner, Niki T. Loges, Heymut Omran
Format: Article
Language:English
Published: F1000 Research Ltd 2016-10-01
Series:F1000Research
Subjects:
Genetics of the Immune System
Methods for Diagnostic & Therapeutic Studies
Online Access:http://f1000research.com/articles/5-2031/v2

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