Routing principles for patients with hereditary angioedema

Currently, there is a lot of effort that is been done to optimize healthcare management for patients with hereditary angioedema, but there are still difficulties in the regions. Epidemiological data on hereditary angioedema indicate a low level of diagnosis. In several regions, patient pathway have...

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Bibliographic Details
Main Authors:	A. N. Pampura, I. P. Vitkovskaya, D. S. Fomina
Format:	Article
Language:	Russian
Published:	Ltd. “The National Academy of Pediatric Science and Innovation” 2021-07-01
Series:	Rossijskij Vestnik Perinatologii i Pediatrii
Subjects:	children hereditary angioedema orphan disease routing drug supply register
Online Access:	https://www.ped-perinatology.ru/jour/article/view/1414

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spelling	doaj-6936014ac4dc4b56b394097c9a949fe22021-07-28T16:27:55ZrusLtd. “The National Academy of Pediatric Science and Innovation”Rossijskij Vestnik Perinatologii i Pediatrii1027-40652500-22282021-07-016639410110.21508/1027-4065-2021-66-3-94-1011052Routing principles for patients with hereditary angioedemaA. N. Pampura0I. P. Vitkovskaya1D. S. Fomina2Veltischev Research and Clinical Institute for Pediatrics of the Pirogov Russian National Research Medical UniversityMorozovskaya Children’s City Clinical Hospital of the Department of Health of MoscowCity Clinical Hospital No.52 of Moscow Healthcare DepartmentCurrently, there is a lot of effort that is been done to optimize healthcare management for patients with hereditary angioedema, but there are still difficulties in the regions. Epidemiological data on hereditary angioedema indicate a low level of diagnosis. In several regions, patient pathway have been developed with a detailed description of the different steps on the patient healthcare journey. The patient pathway is a key component of high-quality medical care with optimal timeliness and financial costs. The article is devoted to the organization of hereditary angioedema patients’ pathway.https://www.ped-perinatology.ru/jour/article/view/1414childrenhereditary angioedemaorphan diseaseroutingdrug supplyregister
collection	DOAJ
language	Russian
format	Article
sources	DOAJ
author	A. N. Pampura I. P. Vitkovskaya D. S. Fomina
spellingShingle	A. N. Pampura I. P. Vitkovskaya D. S. Fomina Routing principles for patients with hereditary angioedema Rossijskij Vestnik Perinatologii i Pediatrii children hereditary angioedema orphan disease routing drug supply register
author_facet	A. N. Pampura I. P. Vitkovskaya D. S. Fomina
author_sort	A. N. Pampura
title	Routing principles for patients with hereditary angioedema
title_short	Routing principles for patients with hereditary angioedema
title_full	Routing principles for patients with hereditary angioedema
title_fullStr	Routing principles for patients with hereditary angioedema
title_full_unstemmed	Routing principles for patients with hereditary angioedema
title_sort	routing principles for patients with hereditary angioedema
publisher	Ltd. “The National Academy of Pediatric Science and Innovation”
series	Rossijskij Vestnik Perinatologii i Pediatrii
issn	1027-4065 2500-2228
publishDate	2021-07-01
description	Currently, there is a lot of effort that is been done to optimize healthcare management for patients with hereditary angioedema, but there are still difficulties in the regions. Epidemiological data on hereditary angioedema indicate a low level of diagnosis. In several regions, patient pathway have been developed with a detailed description of the different steps on the patient healthcare journey. The patient pathway is a key component of high-quality medical care with optimal timeliness and financial costs. The article is devoted to the organization of hereditary angioedema patients’ pathway.
topic	children hereditary angioedema orphan disease routing drug supply register
url	https://www.ped-perinatology.ru/jour/article/view/1414
work_keys_str_mv	AT anpampura routingprinciplesforpatientswithhereditaryangioedema AT ipvitkovskaya routingprinciplesforpatientswithhereditaryangioedema AT dsfomina routingprinciplesforpatientswithhereditaryangioedema
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Routing principles for patients with hereditary angioedema

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