The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust

Background: The epidemiology of abdominal aortic aneurysm (AAA) is changing. Outcomes for aortic surgery have improved. However, the accepted guideline for the management of AAAs has remained unchanged over the last 2 decades. We aimed to gain insight into the patients’ experience while they are man...

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Main Authors:	Regent Lee, Amy Jones, Felicity Woodgate, Kirthi Bellamkonda, Nicholas Killough, Lucy Fulford-Smith, Katherine Hurst, Ismail Cassimjee, Ashok Handa
Format:	Article
Language:	English
Published:	SAGE Publishing 2017-12-01
Series:	Journal of Patient Experience
Online Access:	https://doi.org/10.1177/2374373517715010

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spelling	doaj-70973a23d26d4c6b9be7032720da11442020-11-25T03:17:36ZengSAGE PublishingJournal of Patient Experience2374-37432374-37352017-12-01410.1177/2374373517715010The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS TrustRegent Lee0Amy Jones1Felicity Woodgate2Kirthi Bellamkonda3Nicholas Killough4Lucy Fulford-Smith5Katherine Hurst6Ismail Cassimjee7Ashok Handa8 Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UK Nuffield Department of Surgical Sciences, University of Oxford, Oxford, UK Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UK Nuffield Department of Surgical Sciences, University of Oxford, Oxford, UK Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UK Nuffield Department of Surgical Sciences, University of Oxford, Oxford, UK Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UK Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UK Oxford Regional Vascular Services Unit, Oxford University Hospitals NHS Trust, Oxford, UKBackground: The epidemiology of abdominal aortic aneurysm (AAA) is changing. Outcomes for aortic surgery have improved. However, the accepted guideline for the management of AAAs has remained unchanged over the last 2 decades. We aimed to gain insight into the patients’ experience while they are managed under the traditional clinical pathway. Method: With the help of a patient focus group, we designed a survey to assess the patients’ perception of the disease and their experience during different stages of the AAA clinical care pathway (surveillance, perioperative care, postoperative follow-up). An invitation to participate in the survey was sent to all patients with AAA who were receiving care at the Oxford Regional Vascular Services Unit, part of the Oxford University Hospitals NHS Trust. Results: We received 194 responses from patients with AAA. One hundred seventy-seven were male, with a median age of 75 to 79 years. Just over a third had undergone surgery already, and the remaining 63% were either in surveillance or awaiting surgery. Their experience during the AAA management pathway was mostly positive. Of the issues that were most important to them in terms of their medical care, the provision of explanation and regularity of monitoring stood out as the most common considerations. Conclusion: Patients are generally satisfied with the care they received, but there is room for improvement. They have also highlighted key areas that are most important to them in terms of their medical care. These should guide the future direction for quality improvement and research.https://doi.org/10.1177/2374373517715010
collection	DOAJ
language	English
format	Article
sources	DOAJ
author	Regent Lee Amy Jones Felicity Woodgate Kirthi Bellamkonda Nicholas Killough Lucy Fulford-Smith Katherine Hurst Ismail Cassimjee Ashok Handa
spellingShingle	Regent Lee Amy Jones Felicity Woodgate Kirthi Bellamkonda Nicholas Killough Lucy Fulford-Smith Katherine Hurst Ismail Cassimjee Ashok Handa The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust Journal of Patient Experience
author_facet	Regent Lee Amy Jones Felicity Woodgate Kirthi Bellamkonda Nicholas Killough Lucy Fulford-Smith Katherine Hurst Ismail Cassimjee Ashok Handa
author_sort	Regent Lee
title	The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust
title_short	The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust
title_full	The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust
title_fullStr	The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust
title_full_unstemmed	The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust
title_sort	experience of patients during the clinical management pathway of abdominal aortic aneurysms at a nhs trust
publisher	SAGE Publishing
series	Journal of Patient Experience
issn	2374-3743 2374-3735
publishDate	2017-12-01
description	Background: The epidemiology of abdominal aortic aneurysm (AAA) is changing. Outcomes for aortic surgery have improved. However, the accepted guideline for the management of AAAs has remained unchanged over the last 2 decades. We aimed to gain insight into the patients’ experience while they are managed under the traditional clinical pathway. Method: With the help of a patient focus group, we designed a survey to assess the patients’ perception of the disease and their experience during different stages of the AAA clinical care pathway (surveillance, perioperative care, postoperative follow-up). An invitation to participate in the survey was sent to all patients with AAA who were receiving care at the Oxford Regional Vascular Services Unit, part of the Oxford University Hospitals NHS Trust. Results: We received 194 responses from patients with AAA. One hundred seventy-seven were male, with a median age of 75 to 79 years. Just over a third had undergone surgery already, and the remaining 63% were either in surveillance or awaiting surgery. Their experience during the AAA management pathway was mostly positive. Of the issues that were most important to them in terms of their medical care, the provision of explanation and regularity of monitoring stood out as the most common considerations. Conclusion: Patients are generally satisfied with the care they received, but there is room for improvement. They have also highlighted key areas that are most important to them in terms of their medical care. These should guide the future direction for quality improvement and research.
url	https://doi.org/10.1177/2374373517715010
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The Experience of Patients During the Clinical Management Pathway of Abdominal Aortic Aneurysms at a NHS Trust

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