When should social service referral be considered in phenylketonuria?

When should social service referral be considered in phenylketonuria?

Lifelong low-phenylalanine (Phe) dietary management is the foundation of care in phenylketonuria (PKU). However, strict monitoring of food intake places a burden on patients and their caregivers, and adherence to the required diet frequently decreases in later childhood and adolescence. Rarely, pare...

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Bibliographic Details
Main Authors: Margreet van Rijn, Kirsten Ahring, Amaya Bélanger-Quintana, Kathi Dokoupil, Hulya Gokmen Ozel, Anna Maria Lammardo, Martine Robert, Júlio C. Rocha, Anita MacDonald
Format: Article
Language:English
Published: Elsevier 2015-03-01
Series:Molecular Genetics and Metabolism Reports
Subjects:
Phenylketonuria
Adherence
Social services
Child protection
Foster care
Case study
Online Access:http://www.sciencedirect.com/science/article/pii/S221442691500004X

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