Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version

Abstract Background Mental health conditions affect aspects of people’s lives that are often not captured in common health-related outcome measures. The OxCAP-MH self-reported, quality of life questionnaire based on Sen’s capability approach was developed in the UK to overcome these limitations. The...

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Main Authors: Judit Simon, Agata Łaszewska, Eva Leutner, Georg Spiel, David Churchman, Susanne Mayer
Format: Article
Language:English
Published: BMC 2018-06-01
Series:BMC Psychiatry
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12888-018-1762-3
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spelling doaj-781a2eaf88b24d7fb5b232e2052ac1752020-11-24T21:23:12ZengBMCBMC Psychiatry1471-244X2018-06-011811810.1186/s12888-018-1762-3Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language versionJudit Simon0Agata Łaszewska1Eva Leutner2Georg Spiel3David Churchman4Susanne Mayer5Department of Health Economics, Center for Public Health, Medical University of ViennaDepartment of Health Economics, Center for Public Health, Medical University of Viennapro mente Kärnten, GmbHpro mente ForschungOxford University Innovation (Clinical Outcomes)Department of Health Economics, Center for Public Health, Medical University of ViennaAbstract Background Mental health conditions affect aspects of people’s lives that are often not captured in common health-related outcome measures. The OxCAP-MH self-reported, quality of life questionnaire based on Sen’s capability approach was developed in the UK to overcome these limitations. The aim of this study was to develop a linguistically and culturally valid German version of the questionnaire. Methods Following forward and back translations, the wording underwent cultural and linguistic validation with input from a sample of 12 native German speaking mental health patients in Austria in 2015. Qualitative feedback from patients and carers was obtained via interviews and focus group meetings. Feedback from mental health researchers from Germany was incorporated to account for cross-country differences. Results No significant item modifications were necessary. However, changes due to ambiguous wordings, possibilities for differential interpretations, politically unacceptable expressions, cross-country language differences and differences in political and social systems, were needed. The study confirmed that all questions are relevant and understandable for people with mental health conditions in a German speaking setting and transferability of the questionnaire from English to German speaking countries is feasible. Conclusions Professional translation is necessary for the linguistic accuracy of different language versions of patient-reported outcome measures but does not guarantee linguistic and cultural validity and cross-country transferability. Additional context-specific piloting is essential. The time and resources needed to achieve valid multi-lingual versions should not be underestimated. Further research is ongoing to confirm the psychometric properties of the German version.http://link.springer.com/article/10.1186/s12888-018-1762-3Mental healthQuality of lifeCapabilitiesPROMTranslationValidation
collection DOAJ
language English
format Article
sources DOAJ
author Judit Simon
Agata Łaszewska
Eva Leutner
Georg Spiel
David Churchman
Susanne Mayer
spellingShingle Judit Simon
Agata Łaszewska
Eva Leutner
Georg Spiel
David Churchman
Susanne Mayer
Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
BMC Psychiatry
Mental health
Quality of life
Capabilities
PROM
Translation
Validation
author_facet Judit Simon
Agata Łaszewska
Eva Leutner
Georg Spiel
David Churchman
Susanne Mayer
author_sort Judit Simon
title Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
title_short Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
title_full Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
title_fullStr Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
title_full_unstemmed Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version
title_sort cultural and linguistic transferability of the multi-dimensional oxcap-mh capability instrument for outcome measurement in mental health: the german language version
publisher BMC
series BMC Psychiatry
issn 1471-244X
publishDate 2018-06-01
description Abstract Background Mental health conditions affect aspects of people’s lives that are often not captured in common health-related outcome measures. The OxCAP-MH self-reported, quality of life questionnaire based on Sen’s capability approach was developed in the UK to overcome these limitations. The aim of this study was to develop a linguistically and culturally valid German version of the questionnaire. Methods Following forward and back translations, the wording underwent cultural and linguistic validation with input from a sample of 12 native German speaking mental health patients in Austria in 2015. Qualitative feedback from patients and carers was obtained via interviews and focus group meetings. Feedback from mental health researchers from Germany was incorporated to account for cross-country differences. Results No significant item modifications were necessary. However, changes due to ambiguous wordings, possibilities for differential interpretations, politically unacceptable expressions, cross-country language differences and differences in political and social systems, were needed. The study confirmed that all questions are relevant and understandable for people with mental health conditions in a German speaking setting and transferability of the questionnaire from English to German speaking countries is feasible. Conclusions Professional translation is necessary for the linguistic accuracy of different language versions of patient-reported outcome measures but does not guarantee linguistic and cultural validity and cross-country transferability. Additional context-specific piloting is essential. The time and resources needed to achieve valid multi-lingual versions should not be underestimated. Further research is ongoing to confirm the psychometric properties of the German version.
topic Mental health
Quality of life
Capabilities
PROM
Translation
Validation
url http://link.springer.com/article/10.1186/s12888-018-1762-3
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