Perception of persons with ataxia

• Main Authors: Luba Jakubowska, Magdalena Kazimierska- Zając, Joanna Rosińczuk
• Format: Article
• Language: English
• Published: Foundation Pro Scientia Publica 2018-06-01
• Series: Journal of Education Culture and Society
• Subjects: Spinocerebellar ataxias (SCA); self-presentation; perception of persons with ataxia; image; neurological speech disorders
• Online Access: https://jecs.pl/index.php/jecs/article/view/10.15503jecs20181.82.88

im. The aim of the paper is to present the reasons of the forming of erroneous, unfavourable perception of persons with spinocerebellar ataxia. Concept. Spinocerebellar ataxias (SCA) are a group of degenerative disorders leading to damage of the cerebellum and its connections (Klockgether, Paulson, 2011). The following are distinguished among the neurological speech difficulties present in persons with SCA: dysphagia (difficulties with swallowing leading to problems with eating), speech disorders, and mental disorders. Each of these groups of disorders may lead to the stigmatisation of persons with SCA. Such persons might be seen as sloppy and helpless, and the specificity of speech impairments and uncoordinated movements as well as their irregular gait may cause these persons to be perceived as inebriated. Such presumptions lead to difficulties in social functioning and may be the cause of discrimination, including the denial of help. Conclusion: What is helpful in combating prejudice is, first and foremost, the dissemination of knowledge about the condition, including launching social campaigns presenting the labelled symptoms of SCA. What is more, work with the patient ought to be focused on the development of coping strategies in the social environment rather than alleviating physical difficulties exclusively.