Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling
The Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale geno...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2021-02-01
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| Series: | Frontiers in Genetics |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fgene.2021.633731/full |
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Article |
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DOAJ |
| language |
English |
| format |
Article |
| sources |
DOAJ |
| author |
Yeonsu Jeon Yeonsu Jeon Sungwon Jeon Sungwon Jeon Asta Blazyte Asta Blazyte Yeo Jin Kim Jasmin Junseo Lee Jasmin Junseo Lee Youngjune Bhak Youngjune Bhak Yun Sung Cho Yeshin Park Yeshin Park Eui-Kyu Noh Andrea Manica Jeremy S. Edwards Dan Bolser Sukyeon Kim Yuji Lee Changhan Yoon Changhan Yoon Semin Lee Semin Lee Byung Chul Kim Neung Hwa Park Jong Bhak Jong Bhak Jong Bhak Jong Bhak |
| spellingShingle |
Yeonsu Jeon Yeonsu Jeon Sungwon Jeon Sungwon Jeon Asta Blazyte Asta Blazyte Yeo Jin Kim Jasmin Junseo Lee Jasmin Junseo Lee Youngjune Bhak Youngjune Bhak Yun Sung Cho Yeshin Park Yeshin Park Eui-Kyu Noh Andrea Manica Jeremy S. Edwards Dan Bolser Sukyeon Kim Yuji Lee Changhan Yoon Changhan Yoon Semin Lee Semin Lee Byung Chul Kim Neung Hwa Park Jong Bhak Jong Bhak Jong Bhak Jong Bhak Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling Frontiers in Genetics genomics personal genome project Korean genome project population study integrated healthcare genetic report |
| author_facet |
Yeonsu Jeon Yeonsu Jeon Sungwon Jeon Sungwon Jeon Asta Blazyte Asta Blazyte Yeo Jin Kim Jasmin Junseo Lee Jasmin Junseo Lee Youngjune Bhak Youngjune Bhak Yun Sung Cho Yeshin Park Yeshin Park Eui-Kyu Noh Andrea Manica Jeremy S. Edwards Dan Bolser Sukyeon Kim Yuji Lee Changhan Yoon Changhan Yoon Semin Lee Semin Lee Byung Chul Kim Neung Hwa Park Jong Bhak Jong Bhak Jong Bhak Jong Bhak |
| author_sort |
Yeonsu Jeon |
| title |
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling |
| title_short |
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling |
| title_full |
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling |
| title_fullStr |
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling |
| title_full_unstemmed |
Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by Counseling |
| title_sort |
welfare genome project: a participatory korean personal genome project with free health check-up and genetic report followed by counseling |
| publisher |
Frontiers Media S.A. |
| series |
Frontiers in Genetics |
| issn |
1664-8021 |
| publishDate |
2021-02-01 |
| description |
The Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale genome project with public participation in Korea. The project produced a set of genetic materials, genotype information, clinical data, and lifestyle survey answers from participants aged 20–96. As compensation, the participants received a free general health check-up on 110 clinical traits, accompanied by a genetic report of their genotypes followed by genetic counseling. In a follow-up survey, 91.0% of the participants indicated that their genetic reports motivated them to improve their health. Overall, WGP expanded not only the general awareness of genomics, DNA sequencing technologies, bioinformatics, and bioethics regulations among all the parties involved, but also the general public’s understanding of how genome projects can indirectly benefit their health and lifestyle management. WGP established a data construction framework for not only scientific research but also the welfare of participants. In the future, the WGP framework can help lay the groundwork for a new personalized healthcare system that is seamlessly integrated with existing public medical infrastructure. |
| topic |
genomics personal genome project Korean genome project population study integrated healthcare genetic report |
| url |
https://www.frontiersin.org/articles/10.3389/fgene.2021.633731/full |
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doaj-821820eb4401429a9826b7ccbba8fc1d2021-02-09T06:44:38ZengFrontiers Media S.A.Frontiers in Genetics1664-80212021-02-011210.3389/fgene.2021.633731633731Welfare Genome Project: A Participatory Korean Personal Genome Project With Free Health Check-Up and Genetic Report Followed by CounselingYeonsu Jeon0Yeonsu Jeon1Sungwon Jeon2Sungwon Jeon3Asta Blazyte4Asta Blazyte5Yeo Jin Kim6Jasmin Junseo Lee7Jasmin Junseo Lee8Youngjune Bhak9Youngjune Bhak10Yun Sung Cho11Yeshin Park12Yeshin Park13Eui-Kyu Noh14Andrea Manica15Jeremy S. Edwards16Dan Bolser17Sukyeon Kim18Yuji Lee19Changhan Yoon20Changhan Yoon21Semin Lee22Semin Lee23Byung Chul Kim24Neung Hwa Park25Jong Bhak26Jong Bhak27Jong Bhak28Jong Bhak29Korean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaClinomics Inc., Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaHuman Biology Program, Faculty of Arts and Sciences, University of Toronto, Toronto, ON, CanadaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaClinomics Inc., Ulsan, South KoreaClinomics Inc., Ulsan, South KoreaDepartment of Medical Sciences, Graduate School of Ajou University School, Suwon, South KoreaDepartment of Hematology and Oncology, Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, South KoreaDepartment of Zoology, University of Cambridge, Cambridge, United KingdomDepartment of Chemistry and Chemical Biology, University of New Mexico Comprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesGeromics Ltd., Cambridge, United KingdomKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaClinomics Inc., Ulsan, South Korea0Department of Internal Medicine, Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, South KoreaKorean Genomics Center (KOGIC), Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaDepartment of Biomedical Engineering, College of Information-Bio Convergence Engineering, Ulsan National Institute of Science and Technology (UNIST), Ulsan, South KoreaClinomics Inc., Ulsan, South Korea1Personal Genomics Institute (PGI), Genome Research Foundation (GRF), Osong, South KoreaThe Welfare Genome Project (WGP) provided 1,000 healthy Korean volunteers with detailed genetic and health reports to test the social perception of integrating personal genetic and healthcare data at a large-scale. WGP was launched in 2016 in the Ulsan Metropolitan City as the first large-scale genome project with public participation in Korea. The project produced a set of genetic materials, genotype information, clinical data, and lifestyle survey answers from participants aged 20–96. As compensation, the participants received a free general health check-up on 110 clinical traits, accompanied by a genetic report of their genotypes followed by genetic counseling. In a follow-up survey, 91.0% of the participants indicated that their genetic reports motivated them to improve their health. Overall, WGP expanded not only the general awareness of genomics, DNA sequencing technologies, bioinformatics, and bioethics regulations among all the parties involved, but also the general public’s understanding of how genome projects can indirectly benefit their health and lifestyle management. WGP established a data construction framework for not only scientific research but also the welfare of participants. In the future, the WGP framework can help lay the groundwork for a new personalized healthcare system that is seamlessly integrated with existing public medical infrastructure.https://www.frontiersin.org/articles/10.3389/fgene.2021.633731/fullgenomicspersonal genome projectKorean genome projectpopulation studyintegrated healthcaregenetic report |