Caregiver Burden among Adults Caring for People Living with HIV/AIDS (PLWHA) in Southern India
Introduction: In India, family caregivers provide bulk of care to People Living With HIV/AIDS (PLWHA). Caregiver burden refers to the physical, emotional and financial hardships associated with providing care to a diseased individual. Attending to the needs of PLWHA can place a significant burde...
Main Authors: | , , , , , , |
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Format: | Article |
Language: | English |
Published: |
JCDR Research and Publications Private Limited
2016-05-01
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Series: | Journal of Clinical and Diagnostic Research |
Subjects: | |
Online Access: | https://jcdr.net/articles/PDF/7865/20076_CE(RA1)_F(T)_PF1(ROAK)_PFA(AK)_PF2(PAG).pdf |
Summary: | Introduction: In India, family caregivers provide bulk of care to
People Living With HIV/AIDS (PLWHA). Caregiver burden refers
to the physical, emotional and financial hardships associated with
providing care to a diseased individual. Attending to the needs of
PLWHA can place a significant burden on family members. This
may adversely affect their Quality of Life (QOL).
Aim: The main aim of our study was to assess the caregiver burden
and QOL among the family members of PLWHA in Southern India.
We also determined the impact of caregiver burden on QOL.
Materials and Methods: This facility based cross-sectional study
was carried out at Kasturba Medical College (KMC) Mangalore.
The study was conducted over a period of 18 months starting
from October 2013. A total of 360 caregivers participated in
our study. The data were collected by face-to-face interview.
Caregiver burden was assessed using the Zarit Burden scale and
WHOQOL-BREF scale was used to assess the QOL of caregivers.
The collected data was entered and analysed using SPSS version
11.5. A p-value of less than 0.05 was considered statistically
significant.
Results: The mean age of caregivers was 36.09± 10.18 years. Most
of the caregivers were females 279 (77.5%). Majority of caregivers
184 (51.1%) belonged to Middle/Lower Middle socioeconomic
class (Kuppuswamy class III). Majority of PLWHA 155 (43.1%) had
Stage 2 disease. Mean CD4 count of the patients was 405.2±
240 cells/μL. In our study 88(24.4%) caregivers had moderate
to severe burden and 36(10%) had very severe burden. Physical
domain of QOL showed maximum score of 60.28±13.08, while a
minimum score of 51.88 ± 14.20 was seen in social domain. With
increase in caregiver burden, the mean QOL scores decreased
which was statistically significant.
Conclusion: Our study highlights the need to counsel the
caregivers on how to deal with PLWHA in the family. Family care
plays a major role in the general wellbeing of PLWHA. Majority
of national HIV programmes all over the world focus mainly on
PLWHA. National programmes should immediately address the
mental health issues of caregivers thereby reducing caregiver
burden. More studies on this topic have to be conducted in
developing countries. |
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ISSN: | 2249-782X 0973-709X |