Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK
Abstract Background Around two million adults in the UK have significantly impaired decision-making capacity. However, there are concerns that this population is under-represented in research, due in part to the challenges around obtaining consent. Under-representation of populations denies those wh...
Main Authors: | Victoria Shepherd, Fiona Wood, Richard Griffith, Mark Sheehan, Kerenza Hood |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2019-08-01
|
Series: | Trials |
Subjects: | |
Online Access: | http://link.springer.com/article/10.1186/s13063-019-3603-1 |
Similar Items
-
Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales
by: Victoria Shepherd, et al.
Published: (2019-04-01) -
An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent
by: Victoria Shepherd
Published: (2020-05-01) -
Development of a decision support intervention for family members of adults who lack capacity to consent to trials
by: Victoria Shepherd, et al.
Published: (2021-01-01) -
Letter on “Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK”
by: Sarah Griffiths, et al.
Published: (2020-01-01) -
The Importance of Using Deferred Proxy Consent in Emergency Clinical Research
by: Jake Burkard
Published: (2018-02-01)