Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments
Abstract Background The Symptom Screening in Pediatrics Tool (SSPedi) is valid for assessing symptoms in children aged 8–18 years receiving cancer treatments. The objective was to develop a new self-report symptom screening tool for children receiving cancer treatments who are 4–7 years of age (mini...
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doaj-919fc3b3325b4b3fa81131f9a0e43ecf2020-11-25T01:41:45ZengBMCBMC Cancer1471-24072019-01-011911910.1186/s12885-018-5210-zDevelopment of mini-SSPedi for children 4–7 years of age receiving cancer treatmentsDeborah Tomlinson0Shannon Hyslop1Eliana Stein2Brenda Spiegler3Emily Vettese4Susan Kuczynski5Tal Schechter6L. Lee Dupuis7Lillian Sung8Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningChild Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningChild Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningDepartment of Psychology, The Hospital for Sick ChildrenChild Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningOntario Parents Advocating for Children with Cancer (OPACC)Department of Psychology, The Hospital for Sick ChildrenChild Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningChild Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and LearningAbstract Background The Symptom Screening in Pediatrics Tool (SSPedi) is valid for assessing symptoms in children aged 8–18 years receiving cancer treatments. The objective was to develop a new self-report symptom screening tool for children receiving cancer treatments who are 4–7 years of age (mini-SSPedi), based on SSPedi. Methods Respondents were children with cancer or pediatric hematopoietic stem cell transplantation (HSCT) recipients who were 4–7 years of age. We included the same 15 symptoms contained in SSPedi. Using cognitive interviewing, we developed mini-SSPedi in three phases and made decisions based upon respondent understanding. First, we developed questionnaire structure regarding recall period, concept of bother and response option format. Second, we determined wording of each symptom. Third, we evaluated the entire mini-SSPedi instrument for understanding and ease of completion. Results We enrolled 100 participants in total and included 30, 40 and 30 in each of the three phases. Questionnaire structure was satisfactory with a recall period of “today” and a faces-based 3-point Likert scale. Bother was well-understood. Five symptoms required modification to achieve satisfactory understanding while the remaining 10 SSPedi symptoms did not require modification. Among the last 10 children enrolled, all understood each mini-SSPedi item and none thought mini-SSPedi was hard to complete. Conclusion We developed a symptom screening tool for children with cancer and pediatric HSCT recipients between 4 and 7 years of age that is understandable and easy to complete. Future work will evaluate the psychometric properties of mini-SSPedi and develop an electronic version of the instrument.http://link.springer.com/article/10.1186/s12885-018-5210-zSymptom screeningChildrenSelf-reportCancerHematopoietic stem cell transplantation |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Deborah Tomlinson Shannon Hyslop Eliana Stein Brenda Spiegler Emily Vettese Susan Kuczynski Tal Schechter L. Lee Dupuis Lillian Sung |
spellingShingle |
Deborah Tomlinson Shannon Hyslop Eliana Stein Brenda Spiegler Emily Vettese Susan Kuczynski Tal Schechter L. Lee Dupuis Lillian Sung Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments BMC Cancer Symptom screening Children Self-report Cancer Hematopoietic stem cell transplantation |
author_facet |
Deborah Tomlinson Shannon Hyslop Eliana Stein Brenda Spiegler Emily Vettese Susan Kuczynski Tal Schechter L. Lee Dupuis Lillian Sung |
author_sort |
Deborah Tomlinson |
title |
Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments |
title_short |
Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments |
title_full |
Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments |
title_fullStr |
Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments |
title_full_unstemmed |
Development of mini-SSPedi for children 4–7 years of age receiving cancer treatments |
title_sort |
development of mini-sspedi for children 4–7 years of age receiving cancer treatments |
publisher |
BMC |
series |
BMC Cancer |
issn |
1471-2407 |
publishDate |
2019-01-01 |
description |
Abstract Background The Symptom Screening in Pediatrics Tool (SSPedi) is valid for assessing symptoms in children aged 8–18 years receiving cancer treatments. The objective was to develop a new self-report symptom screening tool for children receiving cancer treatments who are 4–7 years of age (mini-SSPedi), based on SSPedi. Methods Respondents were children with cancer or pediatric hematopoietic stem cell transplantation (HSCT) recipients who were 4–7 years of age. We included the same 15 symptoms contained in SSPedi. Using cognitive interviewing, we developed mini-SSPedi in three phases and made decisions based upon respondent understanding. First, we developed questionnaire structure regarding recall period, concept of bother and response option format. Second, we determined wording of each symptom. Third, we evaluated the entire mini-SSPedi instrument for understanding and ease of completion. Results We enrolled 100 participants in total and included 30, 40 and 30 in each of the three phases. Questionnaire structure was satisfactory with a recall period of “today” and a faces-based 3-point Likert scale. Bother was well-understood. Five symptoms required modification to achieve satisfactory understanding while the remaining 10 SSPedi symptoms did not require modification. Among the last 10 children enrolled, all understood each mini-SSPedi item and none thought mini-SSPedi was hard to complete. Conclusion We developed a symptom screening tool for children with cancer and pediatric HSCT recipients between 4 and 7 years of age that is understandable and easy to complete. Future work will evaluate the psychometric properties of mini-SSPedi and develop an electronic version of the instrument. |
topic |
Symptom screening Children Self-report Cancer Hematopoietic stem cell transplantation |
url |
http://link.springer.com/article/10.1186/s12885-018-5210-z |
work_keys_str_mv |
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