Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review
Objective: To identify genetic counseling programs that do not encourage therapeutic abortion for individuals with hemoglobin disorders and/or for their relatives. Method: Systematic literature review of articles published from 2001 to 2012 that are located in the PubMed, LILACS, SciELO and SCOPUS d...
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Universidade de São Paulo
2014-10-01
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Series: | Revista da Escola de Enfermagem da USP |
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Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000500932&lng=en&tlng=en |
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doaj-92cac7a2a33d47e38445a81df5c1129b2020-11-24T21:20:54ZengUniversidade de São PauloRevista da Escola de Enfermagem da USP1980-220X2014-10-0148593293710.1590/S0080-6234201400005000021S0080-62342014000500932Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature reviewTatiana Dela-Sávia FerreiraElisângela de Paula Silveira-LacerdaMarco Tulio Antonio García-ZapataObjective: To identify genetic counseling programs that do not encourage therapeutic abortion for individuals with hemoglobin disorders and/or for their relatives. Method: Systematic literature review of articles published from 2001 to 2012 that are located in the PubMed, LILACS, SciELO and SCOPUS databases using keywords in Portuguese, English and Spanish and that met the inclusion and exclusion criteria described on a standardized form. Results: A total of 409 articles were located, but only eight (1.9%) were selected for analysis. Conclusion: Although seldom mentioned in the literature, educational/preventive programs targeting hemoglobinopathies are feasible and allow the affected individuals to acquire knowledge on the consequences of this condition and their odds of transmitting it.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000500932&lng=en&tlng=enAsesoramiento genéticoHemoglobinopatíasPrevención de enfermedadesEducación en saludRevisión |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Tatiana Dela-Sávia Ferreira Elisângela de Paula Silveira-Lacerda Marco Tulio Antonio García-Zapata |
spellingShingle |
Tatiana Dela-Sávia Ferreira Elisângela de Paula Silveira-Lacerda Marco Tulio Antonio García-Zapata Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review Revista da Escola de Enfermagem da USP Asesoramiento genético Hemoglobinopatías Prevención de enfermedades Educación en salud Revisión |
author_facet |
Tatiana Dela-Sávia Ferreira Elisângela de Paula Silveira-Lacerda Marco Tulio Antonio García-Zapata |
author_sort |
Tatiana Dela-Sávia Ferreira |
title |
Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
title_short |
Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
title_full |
Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
title_fullStr |
Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
title_full_unstemmed |
Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
title_sort |
genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review |
publisher |
Universidade de São Paulo |
series |
Revista da Escola de Enfermagem da USP |
issn |
1980-220X |
publishDate |
2014-10-01 |
description |
Objective: To identify genetic counseling programs that do not encourage therapeutic abortion for individuals with hemoglobin disorders and/or for their relatives. Method: Systematic literature review of articles published from 2001 to 2012 that are located in the PubMed, LILACS, SciELO and SCOPUS databases using keywords in Portuguese, English and Spanish and that met the inclusion and exclusion criteria described on a standardized form. Results: A total of 409 articles were located, but only eight (1.9%) were selected for analysis. Conclusion: Although seldom mentioned in the literature, educational/preventive programs targeting hemoglobinopathies are feasible and allow the affected individuals to acquire knowledge on the consequences of this condition and their odds of transmitting it. |
topic |
Asesoramiento genético Hemoglobinopatías Prevención de enfermedades Educación en salud Revisión |
url |
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342014000500932&lng=en&tlng=en |
work_keys_str_mv |
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