EPIRARE survey on activities and needs of rare disease registries in the European Union

EPIRARE survey on activities and needs of rare disease registries in the European Union

Bibliographic Details
Main Authors: Taruscio Domenica, Gainotti Sabina, Vittozzi Luciano, Bianchi Fabrizio, Ensini Monica, Posada Manuel
Format: Article
Language:English
Published: BMC 2012-11-01
Series:Orphanet Journal of Rare Diseases
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spelling doaj-a3bfdc4d21f24a1399a08ca01b5e8a3a2020-11-25T01:50:21ZengBMCOrphanet Journal of Rare Diseases1750-11722012-11-017Suppl 2A2210.1186/1750-1172-7-S2-A22EPIRARE survey on activities and needs of rare disease registries in the European UnionTaruscio DomenicaGainotti SabinaVittozzi LucianoBianchi FabrizioEnsini MonicaPosada Manuel
collection DOAJ
language English
format Article
sources DOAJ
author Taruscio Domenica
Gainotti Sabina
Vittozzi Luciano
Bianchi Fabrizio
Ensini Monica
Posada Manuel
spellingShingle Taruscio Domenica
Gainotti Sabina
Vittozzi Luciano
Bianchi Fabrizio
Ensini Monica
Posada Manuel
EPIRARE survey on activities and needs of rare disease registries in the European Union
Orphanet Journal of Rare Diseases
author_facet Taruscio Domenica
Gainotti Sabina
Vittozzi Luciano
Bianchi Fabrizio
Ensini Monica
Posada Manuel
author_sort Taruscio Domenica
title EPIRARE survey on activities and needs of rare disease registries in the European Union
title_short EPIRARE survey on activities and needs of rare disease registries in the European Union
title_full EPIRARE survey on activities and needs of rare disease registries in the European Union
title_fullStr EPIRARE survey on activities and needs of rare disease registries in the European Union
title_full_unstemmed EPIRARE survey on activities and needs of rare disease registries in the European Union
title_sort epirare survey on activities and needs of rare disease registries in the european union
publisher BMC
series Orphanet Journal of Rare Diseases
issn 1750-1172
publishDate 2012-11-01
work_keys_str_mv AT tarusciodomenica epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT gainottisabina epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT vittozziluciano epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT bianchifabrizio epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT ensinimonica epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
AT posadamanuel epiraresurveyonactivitiesandneedsofrarediseaseregistriesintheeuropeanunion
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