The Undiagnosed Diseases Program Integrated Collaboration System (UDPICS): One Program’s Experience Developing Custom Software to Support Research for Complex-Disease Families

The Undiagnosed Diseases Program Integrated Collaboration System (UDPICS): One Program’s Experience Developing Custom Software to Support Research for Complex-Disease Families

The Undiagnosed Diseases Program (UDP) was started in 2008 with the goals of making diagnoses and facilitating related translational research. The individuals and families seen by the UDP are often unique and medically complex. Approximately 40% of UDP cases are pediatric. The Undiagnosed Diseases P...

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Bibliographic Details
Main Authors: Jessica Guzman, Elizabeth Lee, David Draper, Zaheer Valivullah, Guoyun Yu, Murat Sincan, William A. Gahl, David R. Adams
Format: Article
Language:English
Published: MDPI AG 2015-07-01
Series:Children
Subjects:
informatics
UDPICS
Undiagnosed Diseases Program
Undiagnosed Diseases Network
rare disease
collaboration software
Online Access:http://www.mdpi.com/2227-9067/2/3/342

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