Lived experience research as a resource for recovery: a mixed methods study
Abstract Background Lived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants’ experiences. Findings that focus on identifying enablers of recovery from a lived experience pers...
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doaj-a8871bb1e98a4a8aa07924661f3ed9c62020-11-25T03:17:47ZengBMCBMC Psychiatry1471-244X2020-09-0120111310.1186/s12888-020-02861-0Lived experience research as a resource for recovery: a mixed methods studyAnne Honey0Katherine M. Boydell1Francesca Coniglio2Trang Thuy Do3Leonie Dunn4Katherine Gill5Helen Glover6Monique Hines7Justin Newton Scanlan8Barbara Tooth9School of Health Sciences, University of SydneyBlack Dog InstituteMental Health Drug & Alcohol, Northern Sydney Local Health DistrictSchool of Health Sciences, University of SydneySt George and Sutherland Mental Health Services, South Eastern Sydney Local Health DistrictConsumer-Led Research NetworkEnlightened ConsultantsSchool of Health Sciences, University of SydneySchool of Health Sciences, University of SydneyUpfront LeadershipAbstract Background Lived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants’ experiences. Findings that focus on identifying enablers of recovery from a lived experience perspective have the potential to assist people in their recovery process. However, this lived experience research is often difficult to find, access and interpret. We co-produced user-friendly and engaging resources to disseminate findings from six lived experience research studies. This paper seeks to answer the research questions: a) Did exposure to lived experience research increase hopefulness for participants?; and b) How else did interacting with lived experience research resources influence participants’ lives? Methods Thirty-eight participants were introduced to four resources of their choosing by peer workers over a four-week period. The helpfulness of resources was evaluated using mixed methods, including a quasi-experimental analysis of change in hope, an anonymous survey and in-depth interviews. Results Findings indicated that the resources promoted hope, but that increases in hopefulness may not be seen immediately. Other impacts include that the resources: encouraged helpful activities; provided a positive experience; increased valued knowledge; encouraged people to reflect on their journey and think constructively about mental health issues; helped people to feel less alone; and assisted people to explain their situation to others. Conclusions The research suggests the potential usefulness of lived experience research resources, presented in user-friendly formats, in the lives of people who experience mental health issues and implies a need to nurture this type of research.http://link.springer.com/article/10.1186/s12888-020-02861-0Lived experience researchService user researchKnowledge translationMental health recoveryHope |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Anne Honey Katherine M. Boydell Francesca Coniglio Trang Thuy Do Leonie Dunn Katherine Gill Helen Glover Monique Hines Justin Newton Scanlan Barbara Tooth |
spellingShingle |
Anne Honey Katherine M. Boydell Francesca Coniglio Trang Thuy Do Leonie Dunn Katherine Gill Helen Glover Monique Hines Justin Newton Scanlan Barbara Tooth Lived experience research as a resource for recovery: a mixed methods study BMC Psychiatry Lived experience research Service user research Knowledge translation Mental health recovery Hope |
author_facet |
Anne Honey Katherine M. Boydell Francesca Coniglio Trang Thuy Do Leonie Dunn Katherine Gill Helen Glover Monique Hines Justin Newton Scanlan Barbara Tooth |
author_sort |
Anne Honey |
title |
Lived experience research as a resource for recovery: a mixed methods study |
title_short |
Lived experience research as a resource for recovery: a mixed methods study |
title_full |
Lived experience research as a resource for recovery: a mixed methods study |
title_fullStr |
Lived experience research as a resource for recovery: a mixed methods study |
title_full_unstemmed |
Lived experience research as a resource for recovery: a mixed methods study |
title_sort |
lived experience research as a resource for recovery: a mixed methods study |
publisher |
BMC |
series |
BMC Psychiatry |
issn |
1471-244X |
publishDate |
2020-09-01 |
description |
Abstract Background Lived experience research is conducted by people who have experience of mental health issues and is therefore better placed than more traditional research to illuminate participants’ experiences. Findings that focus on identifying enablers of recovery from a lived experience perspective have the potential to assist people in their recovery process. However, this lived experience research is often difficult to find, access and interpret. We co-produced user-friendly and engaging resources to disseminate findings from six lived experience research studies. This paper seeks to answer the research questions: a) Did exposure to lived experience research increase hopefulness for participants?; and b) How else did interacting with lived experience research resources influence participants’ lives? Methods Thirty-eight participants were introduced to four resources of their choosing by peer workers over a four-week period. The helpfulness of resources was evaluated using mixed methods, including a quasi-experimental analysis of change in hope, an anonymous survey and in-depth interviews. Results Findings indicated that the resources promoted hope, but that increases in hopefulness may not be seen immediately. Other impacts include that the resources: encouraged helpful activities; provided a positive experience; increased valued knowledge; encouraged people to reflect on their journey and think constructively about mental health issues; helped people to feel less alone; and assisted people to explain their situation to others. Conclusions The research suggests the potential usefulness of lived experience research resources, presented in user-friendly formats, in the lives of people who experience mental health issues and implies a need to nurture this type of research. |
topic |
Lived experience research Service user research Knowledge translation Mental health recovery Hope |
url |
http://link.springer.com/article/10.1186/s12888-020-02861-0 |
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