A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer

<b>Background:</b> There is a need to understand the common plots (master plots) of illness narratives for people who are treated for cancer. Improved insight would enhance therapeutic relationships and help reduce stress for health care professionals (HCPs). <b>Aim:</b> Iden...

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Main Authors: Kate Reid, Andrew Soundy
Format: Article
Language:English
Published: MDPI AG 2019-10-01
Series:Behavioral Sciences
Subjects:
Online Access:https://www.mdpi.com/2076-328X/9/10/110
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spelling doaj-b07d0e5e35494c3ba5662d8737d9958c2020-11-25T01:32:43ZengMDPI AGBehavioral Sciences2076-328X2019-10-0191011010.3390/bs9100110bs9100110A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck CancerKate Reid0Andrew Soundy1Therapy Services University Hospitals Birmingham, Birmingham B15 2TW, UKSchool of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Birmingham and B15 2TT, UK<b>Background:</b> There is a need to understand the common plots (master plots) of illness narratives for people who are treated for cancer. Improved insight would enhance therapeutic relationships and help reduce stress for health care professionals (HCPs). <b>Aim:</b> Identify and refine the most supported narrative master plots, which convey meaning for the tellers&#8217; lived experience from diagnosis to a year post-treatment for a group of Head and Neck Cancer (H&amp;NC) patients. <b>Method:</b> A purposive sample of individuals with H&amp;NC using a single qualitative interview was undertaken. A narrative analysis was used. <b>Results:</b> Eighteen people (57.8 years, six female and 12 male) with H&amp;NC participated. The average time since treatment began was 10 months. Five master plots were identified: (1) The responsive and reflective narrative, (2) The frail narrative, (3) The recovery narrative, (4) The survive or die narrative and (5) The personal project narrative. <b>Discussion:</b> The identification of narrative master plots of people with H&amp;NC enables HCPs to understand and prepare for the different stories and reactions presented to them. This is important to prevent people&#8217;s reactions being labelled in restrictive ways. The implications of recognising the different experiences are discussed further within the manuscript. Research is needed to build on these findings to promote better patient-centred care in practice.https://www.mdpi.com/2076-328X/9/10/110cancerqualitativenarrativestorypatient-centred care
collection DOAJ
language English
format Article
sources DOAJ
author Kate Reid
Andrew Soundy
spellingShingle Kate Reid
Andrew Soundy
A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
Behavioral Sciences
cancer
qualitative
narrative
story
patient-centred care
author_facet Kate Reid
Andrew Soundy
author_sort Kate Reid
title A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
title_short A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
title_full A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
title_fullStr A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
title_full_unstemmed A Qualitative Study Examining the Illness Narrative Master Plots of People with Head and Neck Cancer
title_sort qualitative study examining the illness narrative master plots of people with head and neck cancer
publisher MDPI AG
series Behavioral Sciences
issn 2076-328X
publishDate 2019-10-01
description <b>Background:</b> There is a need to understand the common plots (master plots) of illness narratives for people who are treated for cancer. Improved insight would enhance therapeutic relationships and help reduce stress for health care professionals (HCPs). <b>Aim:</b> Identify and refine the most supported narrative master plots, which convey meaning for the tellers&#8217; lived experience from diagnosis to a year post-treatment for a group of Head and Neck Cancer (H&amp;NC) patients. <b>Method:</b> A purposive sample of individuals with H&amp;NC using a single qualitative interview was undertaken. A narrative analysis was used. <b>Results:</b> Eighteen people (57.8 years, six female and 12 male) with H&amp;NC participated. The average time since treatment began was 10 months. Five master plots were identified: (1) The responsive and reflective narrative, (2) The frail narrative, (3) The recovery narrative, (4) The survive or die narrative and (5) The personal project narrative. <b>Discussion:</b> The identification of narrative master plots of people with H&amp;NC enables HCPs to understand and prepare for the different stories and reactions presented to them. This is important to prevent people&#8217;s reactions being labelled in restrictive ways. The implications of recognising the different experiences are discussed further within the manuscript. Research is needed to build on these findings to promote better patient-centred care in practice.
topic cancer
qualitative
narrative
story
patient-centred care
url https://www.mdpi.com/2076-328X/9/10/110
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