How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations]
International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them (http://www.invo.org.uk/). Patie...
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doaj-be4db5749ad64ee7a3e661d80fe82f702020-11-25T02:38:49ZengF1000 Research LtdF1000Research2046-14022018-06-01710.12688/f1000research.15162.116517How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations]Pat Hoddinott0Alex Pollock1Alicia O'Cathain2Isabel Boyer3Jane Taylor4Chris MacDonald5Sandy Oliver6Jenny L. Donovan7Nursing, Midwifery and Allied Health Professions Research Unit, Faculty of Health Sciences and Sport, University of Stirling, Stirling, FK9 4LA, UKNursing, Midwifery and Allied Health Professions Research Unit, Glasgow Caledonian University, Glasgow, G4 0BA, UKMedical Care Research Unit, School of Health and Related Research, University of Sheffield, Sheffield, S1 4DA, UKPPI member of NIHR/HTA General Board, NIHR Evaluation, Trials and Studies Coordinating Centre, Southampton, SO16 7NS, UKChair of Patient Insight Group, Arthritis Research UK, Chesterfield, S41 7TD, UKResearch Involvement Manager, Arthritis Research UK, Chesterfield, S41 7TD, UKDepartment of Social Science, Social Science Research Unit, UCL Institute of Education, University College London, London, WC1H 0AL, UKSchool of Social and Community Medicin, University of Bristol, Bristol, BS8 2PS, UKInternational government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them (http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants. Ethical considerations also differ. PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination. Occasionally patients lead or do research. The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.https://f1000research.com/articles/7-752/v1 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Pat Hoddinott Alex Pollock Alicia O'Cathain Isabel Boyer Jane Taylor Chris MacDonald Sandy Oliver Jenny L. Donovan |
spellingShingle |
Pat Hoddinott Alex Pollock Alicia O'Cathain Isabel Boyer Jane Taylor Chris MacDonald Sandy Oliver Jenny L. Donovan How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] F1000Research |
author_facet |
Pat Hoddinott Alex Pollock Alicia O'Cathain Isabel Boyer Jane Taylor Chris MacDonald Sandy Oliver Jenny L. Donovan |
author_sort |
Pat Hoddinott |
title |
How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
title_short |
How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
title_full |
How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
title_fullStr |
How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
title_full_unstemmed |
How to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
title_sort |
how to incorporate patient and public perspectives into the design and conduct of research [version 1; referees: 2 approved, 1 approved with reservations] |
publisher |
F1000 Research Ltd |
series |
F1000Research |
issn |
2046-1402 |
publishDate |
2018-06-01 |
description |
International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out ‘with’ or ‘by’ patients and members of the public rather than ‘to’, ‘about’ or ‘for’ them (http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants. Ethical considerations also differ. PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination. Occasionally patients lead or do research. The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels. |
url |
https://f1000research.com/articles/7-752/v1 |
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