USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS
The participation rates in epidemiologic cohort studies have declined in recent decades. We aimed to evaluate the effect of home recruitment on participation rate and non-response bias within the individuals with psychosis in a follow-up study. The baseline (1999-2001) and follow-up (2008-2010) st...
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doaj-c307ad19476f4af2a8e1eda50aa68c5e2021-09-28T09:46:16ZengThe Finnish Foundation for Psychiatric ResearchPsychiatria Fennica2489-61522020-11-0151108121USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSISMarianne Haapea0Matti Isohanni1Erika Jääskeläinen2Juha Veijola3Jouko Miettunen4Center for Life Course Health Research, University of Oulu, Oulu, Finland, Department of Psychiatry, Oulu University Hospital, Oulu, Finland, Medical Research Center, Oulu University Hospital and University of Oulu, Oulu, Finland, Department of Diagnostic Radiology, Oulu University Hospital, Oulu, Finland Center for Life Course Health Research, University of Oulu, Oulu, FinlandCenter for Life Course Health Research, University of Oulu, Oulu, Finland, Department of Psychiatry, Oulu University Hospital, Oulu, Finland, Medical Research Center, Oulu University Hospital and University of Oulu, Oulu, Finland Department of Psychiatry, Oulu University Hospital, Oulu, FinlandCenter for Life Course Health Research, University of Oulu, Oulu, Finland, Medical Research Center, Oulu University Hospital and University of Oulu, Oulu, FinlandThe participation rates in epidemiologic cohort studies have declined in recent decades. We aimed to evaluate the effect of home recruitment on participation rate and non-response bias within the individuals with psychosis in a follow-up study. The baseline (1999-2001) and follow-up (2008-2010) studies in the Northern Finland Birth Cohort 1966 consisted of magnetic resonance imaging of the brain, cognitive testing and psychiatric assessment. The participation rates were 67% (54/81) for baseline participants, 10% (5/49) for baseline non-participants and 35% (48/136) for those who were diagnosed with a psychosis after the baseline study. In order to increase participation of the individuals who had participated at the baseline (n=81), those who would not have participated otherwise were offered to be interviewed at home. Altogether 18 follow-up participants were home-recruited. Several illness-related variables were compared between the home-recruited participants, standard protocol participants and non-participants. The home-recruited participants had more symptoms, lower functioning, cognition and total grey matter volume, and higher use of antipsychotics measured at baseline (absolute values of effect sizes 0.60-1.05), compared to standard protocol participants and non-participants. The same differences occurred between the home-recruited and standard protocol participants in the follow-up. By using home recruitment we were able to increase the participation rate and to avoid problems of non-response bias. Effective recruitment may need special efforts in population-based studies for individuals with psychosis. Abbreviations: NFBC1966: The Northern Finland Birth Cohort 1966, CRHC: the Care Register for Health Care, PANSS: the Positive and Negative Syndrome Scale, CGI: the Clinical Global Impression, SOFAS: the Social and Occupational Functioning Assessment Scale, MRI: Magnetic Resonance Imaging, TGM: total grey matter volume, CVLT: the California Verbal Learning Test, VOLT: Visual Object Learning Test, AIM: Abstraction, Inhibition and Working Memory task.https://www.psykiatriantutkimussaatio.fi/wp-content/uploads/2020/12/Psychiatria_Fennica-2020_Haapea-et-al..pdfnon-participationnon-response biaspsychosisrecruitment |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Marianne Haapea Matti Isohanni Erika Jääskeläinen Juha Veijola Jouko Miettunen |
spellingShingle |
Marianne Haapea Matti Isohanni Erika Jääskeläinen Juha Veijola Jouko Miettunen USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS Psychiatria Fennica non-participation non-response bias psychosis recruitment |
author_facet |
Marianne Haapea Matti Isohanni Erika Jääskeläinen Juha Veijola Jouko Miettunen |
author_sort |
Marianne Haapea |
title |
USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS |
title_short |
USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS |
title_full |
USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS |
title_fullStr |
USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS |
title_full_unstemmed |
USING HOME RECRUITMENT TO INCREASE PARTICIPATION AND REPRESENTATIVENESS IN RESEARCH AMONG INDIVIDUALS WITH PSYCHOSIS |
title_sort |
using home recruitment to increase participation and representativeness in research among individuals with psychosis |
publisher |
The Finnish Foundation for Psychiatric Research |
series |
Psychiatria Fennica |
issn |
2489-6152 |
publishDate |
2020-11-01 |
description |
The participation rates in epidemiologic cohort studies have declined in recent decades. We aimed to evaluate the effect of home
recruitment on participation rate and non-response bias within the individuals with psychosis in a follow-up study. The baseline
(1999-2001) and follow-up (2008-2010) studies in the Northern Finland Birth Cohort 1966 consisted of magnetic resonance
imaging of the brain, cognitive testing and psychiatric assessment. The participation rates were 67% (54/81) for baseline
participants, 10% (5/49) for baseline non-participants and 35% (48/136) for those who were diagnosed with a psychosis after
the baseline study. In order to increase participation of the individuals who had participated at the baseline (n=81), those
who would not have participated otherwise were offered to be interviewed at home. Altogether 18 follow-up participants were
home-recruited. Several illness-related variables were compared between the home-recruited participants, standard protocol
participants and non-participants. The home-recruited participants had more symptoms, lower functioning, cognition and
total grey matter volume, and higher use of antipsychotics measured at baseline (absolute values of effect sizes 0.60-1.05),
compared to standard protocol participants and non-participants. The same differences occurred between the home-recruited
and standard protocol participants in the follow-up. By using home recruitment we were able to increase the participation rate
and to avoid problems of non-response bias. Effective recruitment may need special efforts in population-based studies for
individuals with psychosis.
Abbreviations: NFBC1966: The Northern Finland Birth Cohort 1966, CRHC: the Care Register for Health Care, PANSS: the
Positive and Negative Syndrome Scale, CGI: the Clinical Global Impression, SOFAS: the Social and Occupational Functioning
Assessment Scale, MRI: Magnetic Resonance Imaging, TGM: total grey matter volume, CVLT: the California Verbal Learning
Test, VOLT: Visual Object Learning Test, AIM: Abstraction, Inhibition and Working Memory task. |
topic |
non-participation non-response bias psychosis recruitment |
url |
https://www.psykiatriantutkimussaatio.fi/wp-content/uploads/2020/12/Psychiatria_Fennica-2020_Haapea-et-al..pdf |
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