Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language
Abstract Introduction Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the qual...
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doaj-cb58b6adf40648b28eebe09110092a772021-03-11T12:47:42ZengBMCAdvances in Rheumatology2523-31062021-02-016111710.1186/s42358-021-00168-6Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese languageRafaela Silva Guimaraes Gonçalves0Alice Heaney1Stephen P. McKenna2Jonas Braynner Carvalho3Maria Eduarda Lima Vidal4Marina Coelho Mores de Brito5Angela Luzia Branco Pinto Duarte6Hospital das Clinicas da Universidade Federal de PernambucoGalen Research LtdGalen Research LtdHospital das Clinicas da Universidade Federal de PernambucoHospital das Clinicas da Universidade Federal de PernambucoHospital das Clinicas da Universidade Federal de PernambucoHospital das Clinicas da Universidade Federal de PernambucoAbstract Introduction Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA. Objectives The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL. Methods The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument. Results Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare. Conclusion The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.https://doi.org/10.1186/s42358-021-00168-6Psoriatic arthritisQuality of lifeValidationTranslation |
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DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Rafaela Silva Guimaraes Gonçalves Alice Heaney Stephen P. McKenna Jonas Braynner Carvalho Maria Eduarda Lima Vidal Marina Coelho Mores de Brito Angela Luzia Branco Pinto Duarte |
spellingShingle |
Rafaela Silva Guimaraes Gonçalves Alice Heaney Stephen P. McKenna Jonas Braynner Carvalho Maria Eduarda Lima Vidal Marina Coelho Mores de Brito Angela Luzia Branco Pinto Duarte Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language Advances in Rheumatology Psoriatic arthritis Quality of life Validation Translation |
author_facet |
Rafaela Silva Guimaraes Gonçalves Alice Heaney Stephen P. McKenna Jonas Braynner Carvalho Maria Eduarda Lima Vidal Marina Coelho Mores de Brito Angela Luzia Branco Pinto Duarte |
author_sort |
Rafaela Silva Guimaraes Gonçalves |
title |
Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language |
title_short |
Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language |
title_full |
Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language |
title_fullStr |
Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language |
title_full_unstemmed |
Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language |
title_sort |
psoriatic arthritis quality of life questionnaire: translation, cultural adaptation and validation into brazilian portuguese language |
publisher |
BMC |
series |
Advances in Rheumatology |
issn |
2523-3106 |
publishDate |
2021-02-01 |
description |
Abstract Introduction Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA. Objectives The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL. Methods The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument. Results Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare. Conclusion The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials. |
topic |
Psoriatic arthritis Quality of life Validation Translation |
url |
https://doi.org/10.1186/s42358-021-00168-6 |
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