Telemedicine strategy of the European Reference Network ITHACA for the diagnosis and management of patients with rare developmental disorders
Abstract Background The European Reference Networks, ERNs, are virtual networks for healthcare providers across Europe to collaborate and share expertise on complex or rare diseases and conditions. As part of the ERNs, the Clinical Patient Management System, CPMS, a secure digital platform, was deve...
Main Authors: | Michael Smith, Elizabeth Alexander, Ruta Marcinkute, Dorica Dan, Myfanwy Rawson, Siddharth Banka, Jason Gavin, Hany Mina, Con Hennessy, Florence Riccardi, Francesca Clementina Radio, Marketa Havlovicova, Matteo Cassina, Adela Chirita Emandi, Melanie Fradin, Lianne Gompertz, Ann Nordgren, Rasa Traberg, Massimiliano Rossi, Aurelién Trimouille, Rasika Sowmyalakshmi, Bruno Dallapiccola, Alessandra Renieri, Laurence Faivre, Bronwyn Kerr, Alain Verloes, Jill Clayton-Smith, Sofia Douzgou, on behalf of ERN ITHACA |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2020-04-01
|
Series: | Orphanet Journal of Rare Diseases |
Subjects: | |
Online Access: | http://link.springer.com/article/10.1186/s13023-020-1349-1 |
Similar Items
-
PARP Inhibitors in Ovarian Cancer: The Route to “Ithaca”
by: Stergios Boussios, et al.
Published: (2019-05-01) -
With Ithaca on My Mind: In Search of the Senses for Teaching
by: Cavallari Filho, Roberto
Published: (2015) - The Birth, Growth, and Development of the Ithaca College Choral Program and Choir
-
Social and emotional learning in the Greek educational system: An Ithaca journey.
by: Chryse Hatzichristou, et al.
Published: (2016-11-01) - The Birth, Growth, and Development of the Ithaca College Choral Program and Choir