Transition of patients with interstitial lung disease from paediatric to adult care
The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of th...
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doaj-d2164603ea9a49a68888feec03368f022021-07-05T08:43:41ZengEuropean Respiratory SocietyERJ Open Research2312-05412021-06-017210.1183/23120541.00964-202000964-2020Transition of patients with interstitial lung disease from paediatric to adult careVáclav Koucký0Petr Pohunek1Martina Vašáková2Andrew Bush3 Paediatric Pulmonology, Paediatric Dept, 2nd Faculty of Medicine, Charles University in Prague and University Hospital Motol, Prague, Czech Republic Paediatric Pulmonology, Paediatric Dept, 2nd Faculty of Medicine, Charles University in Prague and University Hospital Motol, Prague, Czech Republic Dept of Pulmonology, 1st Faculty of Medicine, Charles University in Prague and Thomayer Hospital, Prague, Czech Republic Paediatric Respiratory Medicine, Royal Brompton Hospital and Imperial College, London, UK The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases.http://openres.ersjournals.com/content/7/2/00964-2020.full |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Václav Koucký Petr Pohunek Martina Vašáková Andrew Bush |
spellingShingle |
Václav Koucký Petr Pohunek Martina Vašáková Andrew Bush Transition of patients with interstitial lung disease from paediatric to adult care ERJ Open Research |
author_facet |
Václav Koucký Petr Pohunek Martina Vašáková Andrew Bush |
author_sort |
Václav Koucký |
title |
Transition of patients with interstitial lung disease from paediatric to adult care |
title_short |
Transition of patients with interstitial lung disease from paediatric to adult care |
title_full |
Transition of patients with interstitial lung disease from paediatric to adult care |
title_fullStr |
Transition of patients with interstitial lung disease from paediatric to adult care |
title_full_unstemmed |
Transition of patients with interstitial lung disease from paediatric to adult care |
title_sort |
transition of patients with interstitial lung disease from paediatric to adult care |
publisher |
European Respiratory Society |
series |
ERJ Open Research |
issn |
2312-0541 |
publishDate |
2021-06-01 |
description |
The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions. COST Action 16125 was dedicated to European network for translational research in children's and adult interstitial lung disease. Working Group 5 of the COST Action CA16125 focussed on the problems of transition of children with interstitial lung diseases from paediatric to adult care. Results of this survey performed among members of the Working Group and some affiliated specialists showed highly variable and inadequate current system of transitions of these patients to adult care in most centres. In most centres there is no established and consistent procedure to guarantee appropriate transfer of information and prepare the patient for transition to a new specialist and a new team. Immediate action is therefore required. The Working Group has prepared a model procedure for the transition, based on protocols from several centres with established pathways, either for childhood interstitial lung disease or other chronic respiratory diseases. |
url |
http://openres.ersjournals.com/content/7/2/00964-2020.full |
work_keys_str_mv |
AT vaclavkoucky transitionofpatientswithinterstitiallungdiseasefrompaediatrictoadultcare AT petrpohunek transitionofpatientswithinterstitiallungdiseasefrompaediatrictoadultcare AT martinavasakova transitionofpatientswithinterstitiallungdiseasefrompaediatrictoadultcare AT andrewbush transitionofpatientswithinterstitiallungdiseasefrompaediatrictoadultcare |
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1721318796230131712 |