Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought t...
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Series: | Hepatology Communications |
Online Access: | https://doi.org/10.1002/hep4.1743 |
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doaj-e180b62e9df74c09a3adf796e86f718e2021-09-12T17:38:40ZengWileyHepatology Communications2471-254X2021-09-01591469148010.1002/hep4.1743Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary ApproachArpan A. Patel0Christopher Woodrell1Nneka N. Ufere2Lissi Hansen3Puneeta Tandon4Manisha Verma5Jennifer Lai6Rachel Pinotti7Mina Rakoski8the Palliative Care Education, Advocacy, and Research in Liver Disease (PEARL) Workgroup and the AASLD Public Health / Healthcare Delivery Special Interest Group (SIG)Vatche and Tamar Manoukian Division of Digestive Diseases Department of Medicine David Geffen School of Medicine at University of California Los Angeles Los Angeles CA USABrookdale Department of Geriatrics and Palliative Medicine Icahn School of Medicine at Mount Sinai New York NY USAGastrointestinal Unit Department of Medicine Massachusetts General HospitalHarvard Medical School Boston MA USASchool of Nursing Oregon Health Sciences University Portland OR USADepartment of Medicine Cirrhosis Care Clinic Edmonton AL CanadaDepartment of Digestive Diseases and Transplantation Einstein Healthcare Network Philadelphia PA USADivision of Gastroenterology and Hepatology Department of Medicine University of California San Francisco San Francisco CA USAGustave L. and Janet W. Levy Library Icahn School of Medicine at Mount Sinai New York NY USADivision of Gastroenterology and Hepatology Loma Linda University Health Loma Linda CA USAIndividuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions.https://doi.org/10.1002/hep4.1743 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Arpan A. Patel Christopher Woodrell Nneka N. Ufere Lissi Hansen Puneeta Tandon Manisha Verma Jennifer Lai Rachel Pinotti Mina Rakoski the Palliative Care Education, Advocacy, and Research in Liver Disease (PEARL) Workgroup and the AASLD Public Health / Healthcare Delivery Special Interest Group (SIG) |
spellingShingle |
Arpan A. Patel Christopher Woodrell Nneka N. Ufere Lissi Hansen Puneeta Tandon Manisha Verma Jennifer Lai Rachel Pinotti Mina Rakoski the Palliative Care Education, Advocacy, and Research in Liver Disease (PEARL) Workgroup and the AASLD Public Health / Healthcare Delivery Special Interest Group (SIG) Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach Hepatology Communications |
author_facet |
Arpan A. Patel Christopher Woodrell Nneka N. Ufere Lissi Hansen Puneeta Tandon Manisha Verma Jennifer Lai Rachel Pinotti Mina Rakoski the Palliative Care Education, Advocacy, and Research in Liver Disease (PEARL) Workgroup and the AASLD Public Health / Healthcare Delivery Special Interest Group (SIG) |
author_sort |
Arpan A. Patel |
title |
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach |
title_short |
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach |
title_full |
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach |
title_fullStr |
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach |
title_full_unstemmed |
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach |
title_sort |
developing priorities for palliative care research in advanced liver disease: a multidisciplinary approach |
publisher |
Wiley |
series |
Hepatology Communications |
issn |
2471-254X |
publishDate |
2021-09-01 |
description |
Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions. |
url |
https://doi.org/10.1002/hep4.1743 |
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