The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics
Background: Treatment related toxicity is common after chemotherapy and radiotherapy. Our group has developed and validated an electronic Patient Reported Outcome questionnaire (ePRO) to assess symptoms and toxicity in lung cancer patients receiving (chemo)radiotherapy treatment. We assessed the nee...
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doaj-e39ffd391d554be89a6a72372be6c52d2020-11-24T22:30:24ZengElsevierTechnical Innovations & Patient Support in Radiation Oncology2405-63242018-09-0171116The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinicsKardo Ala-Aldeen0Nicola Stones1David Woolf2Neil Bayman3Joanna Coote4Margaret Harris5Laura Pemberton6Hamid Sheikh7Clara Chan8Clare Hodgson9Janelle Yorke10Corinne Faivre-Finn11Division of Cancer Sciences, University of Manchester, United Kingdom; The Christie NHS Foundation Trust, Manchester, United Kingdom; Corresponding author at: The Christie NHS Foundation Trust, Wilmslow Road, Manchester M20 4BX, UK.Division of Cancer Sciences, University of Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomThe Christie NHS Foundation Trust, Manchester, United KingdomDivision of Cancer Sciences, University of Manchester, United Kingdom; The Christie NHS Foundation Trust, Manchester, United KingdomDivision of Cancer Sciences, University of Manchester, United Kingdom; The Christie NHS Foundation Trust, Manchester, United KingdomBackground: Treatment related toxicity is common after chemotherapy and radiotherapy. Our group has developed and validated an electronic Patient Reported Outcome questionnaire (ePRO) to assess symptoms and toxicity in lung cancer patients receiving (chemo)radiotherapy treatment. We assessed the need for volunteer support in clinics to assist patients in completing ePROs. Methods: Lung Cancer patients attending outpatient or radiotherapy clinics at The Christie NHS Foundation Trust, Manchester were consented and asked to complete a Patient Reported Outcomes questionnaire using an electronic device (a touchscreen). Trained volunteers were available if patients required help such as verbal or physical assistance. The primary objective was to determine the need for volunteers to assist lung cancer patients in completing ePROs. Results: 27/86 (31.4%) of patients who consented to this study required assistance to complete the ePRO. After questioning, we found that only 7/86 (8.1%) would have relied on volunteers for assistance as the majority of patients had a companion that could have provided help. 81/86 (94.2%) of patients were satisfied with the use of a touchscreen tablet to complete the ePRO. Conclusion: Our results demonstrate that the introduction of ePROs in lung cancer outpatient clinics is feasible, even without the use of volunteers for the majority of patients. The implementation of ePROs would allow large volumes of high quality (chemo)radiotherapy toxicity data to be collected accurately and quickly. This is essential for the development of predictive models of outcome using population-based data, which could allow the personalisation of (chemo)radiotherapy treatment for lung cancer patients. Keywords: Chemotherapy, Radiotherapy, Toxicity, Patient reported outcomeshttp://www.sciencedirect.com/science/article/pii/S2405632418300039 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Kardo Ala-Aldeen Nicola Stones David Woolf Neil Bayman Joanna Coote Margaret Harris Laura Pemberton Hamid Sheikh Clara Chan Clare Hodgson Janelle Yorke Corinne Faivre-Finn |
spellingShingle |
Kardo Ala-Aldeen Nicola Stones David Woolf Neil Bayman Joanna Coote Margaret Harris Laura Pemberton Hamid Sheikh Clara Chan Clare Hodgson Janelle Yorke Corinne Faivre-Finn The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics Technical Innovations & Patient Support in Radiation Oncology |
author_facet |
Kardo Ala-Aldeen Nicola Stones David Woolf Neil Bayman Joanna Coote Margaret Harris Laura Pemberton Hamid Sheikh Clara Chan Clare Hodgson Janelle Yorke Corinne Faivre-Finn |
author_sort |
Kardo Ala-Aldeen |
title |
The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
title_short |
The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
title_full |
The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
title_fullStr |
The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
title_full_unstemmed |
The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
title_sort |
use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics |
publisher |
Elsevier |
series |
Technical Innovations & Patient Support in Radiation Oncology |
issn |
2405-6324 |
publishDate |
2018-09-01 |
description |
Background: Treatment related toxicity is common after chemotherapy and radiotherapy. Our group has developed and validated an electronic Patient Reported Outcome questionnaire (ePRO) to assess symptoms and toxicity in lung cancer patients receiving (chemo)radiotherapy treatment. We assessed the need for volunteer support in clinics to assist patients in completing ePROs. Methods: Lung Cancer patients attending outpatient or radiotherapy clinics at The Christie NHS Foundation Trust, Manchester were consented and asked to complete a Patient Reported Outcomes questionnaire using an electronic device (a touchscreen). Trained volunteers were available if patients required help such as verbal or physical assistance. The primary objective was to determine the need for volunteers to assist lung cancer patients in completing ePROs. Results: 27/86 (31.4%) of patients who consented to this study required assistance to complete the ePRO. After questioning, we found that only 7/86 (8.1%) would have relied on volunteers for assistance as the majority of patients had a companion that could have provided help. 81/86 (94.2%) of patients were satisfied with the use of a touchscreen tablet to complete the ePRO. Conclusion: Our results demonstrate that the introduction of ePROs in lung cancer outpatient clinics is feasible, even without the use of volunteers for the majority of patients. The implementation of ePROs would allow large volumes of high quality (chemo)radiotherapy toxicity data to be collected accurately and quickly. This is essential for the development of predictive models of outcome using population-based data, which could allow the personalisation of (chemo)radiotherapy treatment for lung cancer patients. Keywords: Chemotherapy, Radiotherapy, Toxicity, Patient reported outcomes |
url |
http://www.sciencedirect.com/science/article/pii/S2405632418300039 |
work_keys_str_mv |
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