A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
Background. Parkinson’s disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based applica...
Main Authors: | , , |
---|---|
Format: | Article |
Language: | English |
Published: |
Hindawi Limited
2013-01-01
|
Series: | Parkinson's Disease |
Online Access: | http://dx.doi.org/10.1155/2013/974964 |
id |
doaj-e403322997fa44169183a292e9dbbe14 |
---|---|
record_format |
Article |
spelling |
doaj-e403322997fa44169183a292e9dbbe142020-11-24T23:26:10ZengHindawi LimitedParkinson's Disease2090-80832042-00802013-01-01201310.1155/2013/974964974964A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group TechniqueGalit Kleiner-Fisman0Pearl Gryfe1Gary Naglie2ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, M6A 2E1, CanadaATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, M6A 2E1, CanadaBaycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, M6A 2E1, CanadaBackground. Parkinson’s disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson’s disease (PwP) has the potential to change patient’s lives. Objectives. To determine what information PwP perceive could enhance their quality of life. Methods. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items. A “summary score” (sum of rank × frequency) was calculated. Results. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. Conclusions. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD.http://dx.doi.org/10.1155/2013/974964 |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Galit Kleiner-Fisman Pearl Gryfe Gary Naglie |
spellingShingle |
Galit Kleiner-Fisman Pearl Gryfe Gary Naglie A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique Parkinson's Disease |
author_facet |
Galit Kleiner-Fisman Pearl Gryfe Gary Naglie |
author_sort |
Galit Kleiner-Fisman |
title |
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique |
title_short |
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique |
title_full |
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique |
title_fullStr |
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique |
title_full_unstemmed |
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique |
title_sort |
patient-based needs assessment for living well with parkinson disease: implementation via nominal group technique |
publisher |
Hindawi Limited |
series |
Parkinson's Disease |
issn |
2090-8083 2042-0080 |
publishDate |
2013-01-01 |
description |
Background. Parkinson’s disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson’s disease (PwP) has the potential to change patient’s lives.
Objectives. To determine what information PwP perceive could enhance their quality of life. Methods. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items. A “summary score” (sum of rank × frequency) was calculated. Results. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. Conclusions. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD. |
url |
http://dx.doi.org/10.1155/2013/974964 |
work_keys_str_mv |
AT galitkleinerfisman apatientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique AT pearlgryfe apatientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique AT garynaglie apatientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique AT galitkleinerfisman patientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique AT pearlgryfe patientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique AT garynaglie patientbasedneedsassessmentforlivingwellwithparkinsondiseaseimplementationvianominalgrouptechnique |
_version_ |
1725555923871596544 |