Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description

Abstract In countries where headache services exist at all, their focus is usually on specialist (tertiary) care. This is clinically and economically inappropriate: most headache disorders can effectively and more efficiently (and at lower cost) be treated in educationally supported primary care. At...

Full description

Bibliographic Details
Main Authors: Timothy J. Steiner, Rigmor Jensen, Zaza Katsarava, Lars Jacob Stovner, Derya Uluduz, Latifa Adarmouch, Mohammed Al Jumah, Ali M. Al Khathaami, Messoud Ashina, Mark Braschinsky, Susan Broner, Jon H. Eliasson, Raquel Gil-Gouveia, Juan B. Gómez-Galván, Larus S. Gudmundsson, Akbar A. Herekar, Nfwama Kawatu, Najib Kissani, Girish Baburao Kulkarni, Elena R. Lebedeva, Matilde Leonardi, Mattias Linde, Otgonbayar Luvsannorov, Youssoufa Maiga, Ivan Milanov, Dimos D. Mitsikostas, Teymur Musayev, Jes Olesen, Vera Osipova, Koen Paemeleire, Mario F. P. Peres, Guiovanna Quispe, Girish N. Rao, Ajay Risal, Elena Ruiz de la Torre, Deanna Saylor, Mansoureh Togha, Sheng-Yuan Yu, Mehila Zebenigus, Yared Zenebe Zewde, Jasna Zidverc-Trajković, Michela Tinelli, on behalf of Lifting The Burden: the Global Campaign against Headache
Format: Article
Language:English
Published: BMC 2021-07-01
Series:The Journal of Headache and Pain
Subjects:
Online Access:https://doi.org/10.1186/s10194-021-01265-z
id doaj-e735f34c7c324f108a7b7216a7e1acbe
record_format Article
collection DOAJ
language English
format Article
sources DOAJ
author Timothy J. Steiner
Rigmor Jensen
Zaza Katsarava
Lars Jacob Stovner
Derya Uluduz
Latifa Adarmouch
Mohammed Al Jumah
Ali M. Al Khathaami
Messoud Ashina
Mark Braschinsky
Susan Broner
Jon H. Eliasson
Raquel Gil-Gouveia
Juan B. Gómez-Galván
Larus S. Gudmundsson
Akbar A. Herekar
Nfwama Kawatu
Najib Kissani
Girish Baburao Kulkarni
Elena R. Lebedeva
Matilde Leonardi
Mattias Linde
Otgonbayar Luvsannorov
Youssoufa Maiga
Ivan Milanov
Dimos D. Mitsikostas
Teymur Musayev
Jes Olesen
Vera Osipova
Koen Paemeleire
Mario F. P. Peres
Guiovanna Quispe
Girish N. Rao
Ajay Risal
Elena Ruiz de la Torre
Deanna Saylor
Mansoureh Togha
Sheng-Yuan Yu
Mehila Zebenigus
Yared Zenebe Zewde
Jasna Zidverc-Trajković
Michela Tinelli
on behalf of Lifting The Burden: the Global Campaign against Headache
spellingShingle Timothy J. Steiner
Rigmor Jensen
Zaza Katsarava
Lars Jacob Stovner
Derya Uluduz
Latifa Adarmouch
Mohammed Al Jumah
Ali M. Al Khathaami
Messoud Ashina
Mark Braschinsky
Susan Broner
Jon H. Eliasson
Raquel Gil-Gouveia
Juan B. Gómez-Galván
Larus S. Gudmundsson
Akbar A. Herekar
Nfwama Kawatu
Najib Kissani
Girish Baburao Kulkarni
Elena R. Lebedeva
Matilde Leonardi
Mattias Linde
Otgonbayar Luvsannorov
Youssoufa Maiga
Ivan Milanov
Dimos D. Mitsikostas
Teymur Musayev
Jes Olesen
Vera Osipova
Koen Paemeleire
Mario F. P. Peres
Guiovanna Quispe
Girish N. Rao
Ajay Risal
Elena Ruiz de la Torre
Deanna Saylor
Mansoureh Togha
Sheng-Yuan Yu
Mehila Zebenigus
Yared Zenebe Zewde
Jasna Zidverc-Trajković
Michela Tinelli
on behalf of Lifting The Burden: the Global Campaign against Headache
Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
The Journal of Headache and Pain
Headache disorders
Public health
Health policy
Barriers to care
Needs assessment
Health-technology assessment
author_facet Timothy J. Steiner
Rigmor Jensen
Zaza Katsarava
Lars Jacob Stovner
Derya Uluduz
Latifa Adarmouch
Mohammed Al Jumah
Ali M. Al Khathaami
Messoud Ashina
Mark Braschinsky
Susan Broner
Jon H. Eliasson
Raquel Gil-Gouveia
Juan B. Gómez-Galván
Larus S. Gudmundsson
Akbar A. Herekar
Nfwama Kawatu
Najib Kissani
Girish Baburao Kulkarni
Elena R. Lebedeva
Matilde Leonardi
Mattias Linde
Otgonbayar Luvsannorov
Youssoufa Maiga
Ivan Milanov
Dimos D. Mitsikostas
Teymur Musayev
Jes Olesen
Vera Osipova
Koen Paemeleire
Mario F. P. Peres
Guiovanna Quispe
Girish N. Rao
Ajay Risal
Elena Ruiz de la Torre
Deanna Saylor
Mansoureh Togha
Sheng-Yuan Yu
Mehila Zebenigus
Yared Zenebe Zewde
Jasna Zidverc-Trajković
Michela Tinelli
on behalf of Lifting The Burden: the Global Campaign against Headache
author_sort Timothy J. Steiner
title Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
title_short Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
title_full Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
title_fullStr Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
title_full_unstemmed Structured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and description
title_sort structured q1 headache services as the solution to the ill-health burden of headache: 1. rationale and description
publisher BMC
series The Journal of Headache and Pain
issn 1129-2369
1129-2377
publishDate 2021-07-01
description Abstract In countries where headache services exist at all, their focus is usually on specialist (tertiary) care. This is clinically and economically inappropriate: most headache disorders can effectively and more efficiently (and at lower cost) be treated in educationally supported primary care. At the same time, compartmentalizing divisions between primary, secondary and tertiary care in many health-care systems create multiple inefficiencies, confronting patients attempting to navigate these levels (the “patient journey”) with perplexing obstacles. High demand for headache care, estimated here in a needs-assessment exercise, is the biggest of the challenges to reform. It is also the principal reason why reform is necessary. The structured headache services model presented here by experts from all world regions on behalf of the Global Campaign against Headache is the suggested health-care solution to headache. It develops and refines previous proposals, responding to the challenge of high demand by basing headache services in primary care, with two supporting arguments. First, only primary care can deliver headache services equitably to the large numbers of people needing it. Second, with educational supports, they can do so effectively to most of these people. The model calls for vertical integration between care levels (primary, secondary and tertiary), and protection of the more advanced levels for the minority of patients who need them. At the same time, it is amenable to horizontal integration with other care services. It is adaptable according to the broader national or regional health services in which headache services should be embedded. It is, according to evidence and argument presented, an efficient and cost-effective model, but these are claims to be tested in formal economic analyses.
topic Headache disorders
Public health
Health policy
Barriers to care
Needs assessment
Health-technology assessment
url https://doi.org/10.1186/s10194-021-01265-z
work_keys_str_mv AT timothyjsteiner structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT rigmorjensen structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT zazakatsarava structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT larsjacobstovner structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT deryauluduz structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT latifaadarmouch structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT mohammedaljumah structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT alimalkhathaami structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT messoudashina structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT markbraschinsky structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT susanbroner structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT jonheliasson structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT raquelgilgouveia structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT juanbgomezgalvan structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT larussgudmundsson structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT akbaraherekar structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT nfwamakawatu structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT najibkissani structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT girishbaburaokulkarni structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT elenarlebedeva structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT matildeleonardi structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT mattiaslinde structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT otgonbayarluvsannorov structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT youssoufamaiga structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT ivanmilanov structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT dimosdmitsikostas structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT teymurmusayev structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT jesolesen structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT veraosipova structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT koenpaemeleire structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT mariofpperes structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT guiovannaquispe structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT girishnrao structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT ajayrisal structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT elenaruizdelatorre structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT deannasaylor structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT mansourehtogha structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT shengyuanyu structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT mehilazebenigus structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT yaredzenebezewde structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT jasnazidverctrajkovic structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT michelatinelli structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
AT onbehalfofliftingtheburdentheglobalcampaignagainstheadache structuredq1headacheservicesasthesolutiontotheillhealthburdenofheadache1rationaleanddescription
_version_ 1721282916966727680
spelling doaj-e735f34c7c324f108a7b7216a7e1acbe2021-07-25T11:41:21ZengBMCThe Journal of Headache and Pain1129-23691129-23772021-07-0122112210.1186/s10194-021-01265-zStructured Q1 headache services as the solution to the ill-health burden of headache: 1. Rationale and descriptionTimothy J. Steiner0Rigmor Jensen1Zaza Katsarava2Lars Jacob Stovner3Derya Uluduz4Latifa Adarmouch5Mohammed Al Jumah6Ali M. Al Khathaami7Messoud Ashina8Mark Braschinsky9Susan Broner10Jon H. Eliasson11Raquel Gil-Gouveia12Juan B. Gómez-Galván13Larus S. Gudmundsson14Akbar A. Herekar15Nfwama Kawatu16Najib Kissani17Girish Baburao Kulkarni18Elena R. Lebedeva19Matilde Leonardi20Mattias Linde21Otgonbayar Luvsannorov22Youssoufa Maiga23Ivan Milanov24Dimos D. Mitsikostas25Teymur Musayev26Jes Olesen27Vera Osipova28Koen Paemeleire29Mario F. P. Peres30Guiovanna Quispe31Girish N. Rao32Ajay Risal33Elena Ruiz de la Torre34Deanna Saylor35Mansoureh Togha36Sheng-Yuan Yu37Mehila Zebenigus38Yared Zenebe Zewde39Jasna Zidverc-Trajković40Michela Tinelli41on behalf of Lifting The Burden: the Global Campaign against HeadacheDepartment of Neuromedicine and Movement Science, NTNU Norwegian University of Science and TechnologyDanish Headache Centre, Department of Neurology, University of CopenhagenEvangelical Hospital UnnaDepartment of Neuromedicine and Movement Science, NTNU Norwegian University of Science and TechnologyNeurology Department, Cerrahpaşa School of Medicine, Istanbul UniversityCommunity Medicine and Public Health Department, Cadi Ayyad University School of MedicineDepartment of Neurosciences, King Fahad Medical City, MOHKing Saud Bin Abdulaziz University for Health SciencesDanish Headache Centre, Department of Neurology, University of CopenhagenHeadache Clinic, Neurology Clinic, Tartu University HospitalWeill Cornell Medicine Headache Program, Department of Neurology, Weill Cornell Medical CollegeDepartment of Neurology, CentralsjukhusetHeadache Centre, Neurology Department, Hospital da LuzHospital de Sant Joan Despí Moisès BroggiFaculty of Pharmaceutical Sciences, School of Health Sciences, University of IcelandDepartment of Anesthesiology, Medical College of Georgia, Augusta UniversityDepartment of Paediatrics, University Teaching HospitalLaboratory of Clinical and Experimental Neuroscience, Faculty of Medicine, Université Cadi Ayyad MarrakechDepartment of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS)Department of Neurology and Neurosurgery, The Ural State Medical UniversityNeurology, Public Health, Disability Unit, Fondazione IRCCS Istituto Neurologico Carlo BestaDepartment of Neuromedicine and Movement Science, NTNU Norwegian University of Science and TechnologyDepartment of Neurology, Mongolian National University of Medical SciencesFaculty of Medicine, University of Technical Sciences and TechnologiesDepartment of Neurology, University Hospital of Neurology and Psychiatry “St Naum”, Medical University Sofia1st Neurology Department, Aeginition Hospital, Medical School, National and Kapodistrian University of AthensChief of Department of Health Organization, Ministry of HealthDanish Headache Centre, Department of Neurology, University of CopenhagenMoscow Research Clinical Centre for NeuropsychiatryDepartment of Neurology, Ghent University HospitalInstitute of Psychiatry, University of São Paulo, Hospital Albert EinsteinDepartment of Neurology, Hospital Luis Negreiros VegaDepartment of Epidemiology, National Institute of Mental Health and Neurosciences (NIMHANS)Department of Psychiatry, Kathmandu University School of Medical Sciences (KUSMS)European Migraine and Headache AllianceDepartment of Neurology, Johns Hopkins University School of MedicineNeurology Ward, Sina Hospital, School of Medicine, Tehran University of Medical SciencesInternational Headache Centre, Department of Neurology, Chinese PLA General HospitalDepartment of Neurology, School of Medicine, College of Health Sciences, Addis Ababa UniversityDepartment of Neurology, School of Medicine, College of Health Sciences, Addis Ababa UniversityNeurology Clinic, Clinical Centre of SerbiaCare Policy and Evaluation Centre, The London School of Economics and Political ScienceAbstract In countries where headache services exist at all, their focus is usually on specialist (tertiary) care. This is clinically and economically inappropriate: most headache disorders can effectively and more efficiently (and at lower cost) be treated in educationally supported primary care. At the same time, compartmentalizing divisions between primary, secondary and tertiary care in many health-care systems create multiple inefficiencies, confronting patients attempting to navigate these levels (the “patient journey”) with perplexing obstacles. High demand for headache care, estimated here in a needs-assessment exercise, is the biggest of the challenges to reform. It is also the principal reason why reform is necessary. The structured headache services model presented here by experts from all world regions on behalf of the Global Campaign against Headache is the suggested health-care solution to headache. It develops and refines previous proposals, responding to the challenge of high demand by basing headache services in primary care, with two supporting arguments. First, only primary care can deliver headache services equitably to the large numbers of people needing it. Second, with educational supports, they can do so effectively to most of these people. The model calls for vertical integration between care levels (primary, secondary and tertiary), and protection of the more advanced levels for the minority of patients who need them. At the same time, it is amenable to horizontal integration with other care services. It is adaptable according to the broader national or regional health services in which headache services should be embedded. It is, according to evidence and argument presented, an efficient and cost-effective model, but these are claims to be tested in formal economic analyses.https://doi.org/10.1186/s10194-021-01265-zHeadache disordersPublic healthHealth policyBarriers to careNeeds assessmentHealth-technology assessment