Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach.
The Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study and identified b...
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doaj-f175c9ede3864863a09f95096084037c2020-11-25T01:24:05ZengPublic Library of Science (PLoS)PLoS ONE1932-62032014-01-0196e9961410.1371/journal.pone.0099614Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach.Sara NewmanTerri ChengDonica M GhahateJeanette BobeluPhillip SandyThomas FaberVallabh O ShahThe Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study and identified barriers to healthcare. We concluded that the burden presented by these barriers ultimately translates into a lack of patient activation and engagement in their health care including for diabetes, effectively hindering adoption of healthy behaviors.Community health representatives (CHRs) led 10 one-hour focus group sessions to elicit information on diabetes knowledge and self-management strategies at which a total of 84 people participated. Audiotapes were translated and transcribed by bilingual ZHI staff. We reduced the text to thematic categories, constructed a coding dictionary and inserted the text into NVivo 9 program.The focus groups revealed that despite extensive personal or family experiences with diabetes or complications, participants identified knowledge gaps in the disease progression and disease management. However, we gained insight into how many Zunis conceptualize the etiology of diabetes, risk factors associated with diabetes, sources of knowledge and self-management practices.We concluded that many of the Zuni diabetics experience significant impacts on their life when they were diagnosed with diabetes and suffered the plight of stigmatization. We further concluded that developing Zuni culture specific diabetes care should focus on family involvement with continued education.http://europepmc.org/articles/PMC4053347?pdf=render |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Sara Newman Terri Cheng Donica M Ghahate Jeanette Bobelu Phillip Sandy Thomas Faber Vallabh O Shah |
spellingShingle |
Sara Newman Terri Cheng Donica M Ghahate Jeanette Bobelu Phillip Sandy Thomas Faber Vallabh O Shah Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. PLoS ONE |
author_facet |
Sara Newman Terri Cheng Donica M Ghahate Jeanette Bobelu Phillip Sandy Thomas Faber Vallabh O Shah |
author_sort |
Sara Newman |
title |
Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. |
title_short |
Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. |
title_full |
Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. |
title_fullStr |
Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. |
title_full_unstemmed |
Assessing knowledge and attitudes of diabetes in Zuni Indians using a culture-centered approach. |
title_sort |
assessing knowledge and attitudes of diabetes in zuni indians using a culture-centered approach. |
publisher |
Public Library of Science (PLoS) |
series |
PLoS ONE |
issn |
1932-6203 |
publishDate |
2014-01-01 |
description |
The Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study and identified barriers to healthcare. We concluded that the burden presented by these barriers ultimately translates into a lack of patient activation and engagement in their health care including for diabetes, effectively hindering adoption of healthy behaviors.Community health representatives (CHRs) led 10 one-hour focus group sessions to elicit information on diabetes knowledge and self-management strategies at which a total of 84 people participated. Audiotapes were translated and transcribed by bilingual ZHI staff. We reduced the text to thematic categories, constructed a coding dictionary and inserted the text into NVivo 9 program.The focus groups revealed that despite extensive personal or family experiences with diabetes or complications, participants identified knowledge gaps in the disease progression and disease management. However, we gained insight into how many Zunis conceptualize the etiology of diabetes, risk factors associated with diabetes, sources of knowledge and self-management practices.We concluded that many of the Zuni diabetics experience significant impacts on their life when they were diagnosed with diabetes and suffered the plight of stigmatization. We further concluded that developing Zuni culture specific diabetes care should focus on family involvement with continued education. |
url |
http://europepmc.org/articles/PMC4053347?pdf=render |
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