Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation

The focus on cancer rehabilitation has increased, but breast cancer patients still report unmet rehabilitation needs. Since many women today will live long beyond their diagnosis, there are multiple challenges for the healthcare system in supporting these women in their new life situation. A more in...

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Main Authors: Åsa Mohlin, Katarina Bernhardsson
Format: Article
Language:English
Published: MDPI AG 2021-07-01
Series:Current Oncology
Subjects:
Online Access:https://www.mdpi.com/1718-7729/28/4/249
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spelling doaj-fc6ff6cc51f04f8a95a99d5a8df18a742021-09-20T10:11:04ZengMDPI AGCurrent Oncology1198-00521718-77292021-07-01282492840285110.3390/curroncol28040249Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer RehabilitationÅsa Mohlin0Katarina Bernhardsson1Department of Clinical Sciences Lund, Division of Medical History, Lund University, BMC, 221 84 Lund, SwedenBirgit Rausing Centre for Medical Humanities, Lund University, BMC, 221 84 Lund, SwedenThe focus on cancer rehabilitation has increased, but breast cancer patients still report unmet rehabilitation needs. Since many women today will live long beyond their diagnosis, there are multiple challenges for the healthcare system in supporting these women in their new life situation. A more individualized approach is seen as necessary to optimize the rehabilitation for survivors. Pathographies, i.e., autobiographical or biographical accounts of experiences of illness, expose us to personal accounts of the journey through illness and treatment, offering us details, emotions, phrasings, and imagery from an individual perspective. In this literary study, we have analyzed two contemporary Swedish-speaking pathographies about breast cancer. In our analysis, we have presented perspectives on survivorship, and the authors’ ways of conveying their breast cancer experiences through narrative. The pathographies envision the prominent impact the breast cancer has on the authors’ lives. Narratives of survivorship have the potential to complement the more general medical knowledge with their nuanced and multifaceted stories of breast cancer. Learning from this type of material may improve the understanding of the complexity of breast cancer survivorship issues. This may be a way to become more attuned to identifying individual needs and preferences of breast cancer patients.https://www.mdpi.com/1718-7729/28/4/249breast cancercancer survivorshiprehabilitationpathographiespatient narrativesqualitative
collection DOAJ
language English
format Article
sources DOAJ
author Åsa Mohlin
Katarina Bernhardsson
spellingShingle Åsa Mohlin
Katarina Bernhardsson
Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
Current Oncology
breast cancer
cancer survivorship
rehabilitation
pathographies
patient narratives
qualitative
author_facet Åsa Mohlin
Katarina Bernhardsson
author_sort Åsa Mohlin
title Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
title_short Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
title_full Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
title_fullStr Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
title_full_unstemmed Narratives of Survivorship: A Study of Breast Cancer Pathographies and Their Place in Cancer Rehabilitation
title_sort narratives of survivorship: a study of breast cancer pathographies and their place in cancer rehabilitation
publisher MDPI AG
series Current Oncology
issn 1198-0052
1718-7729
publishDate 2021-07-01
description The focus on cancer rehabilitation has increased, but breast cancer patients still report unmet rehabilitation needs. Since many women today will live long beyond their diagnosis, there are multiple challenges for the healthcare system in supporting these women in their new life situation. A more individualized approach is seen as necessary to optimize the rehabilitation for survivors. Pathographies, i.e., autobiographical or biographical accounts of experiences of illness, expose us to personal accounts of the journey through illness and treatment, offering us details, emotions, phrasings, and imagery from an individual perspective. In this literary study, we have analyzed two contemporary Swedish-speaking pathographies about breast cancer. In our analysis, we have presented perspectives on survivorship, and the authors’ ways of conveying their breast cancer experiences through narrative. The pathographies envision the prominent impact the breast cancer has on the authors’ lives. Narratives of survivorship have the potential to complement the more general medical knowledge with their nuanced and multifaceted stories of breast cancer. Learning from this type of material may improve the understanding of the complexity of breast cancer survivorship issues. This may be a way to become more attuned to identifying individual needs and preferences of breast cancer patients.
topic breast cancer
cancer survivorship
rehabilitation
pathographies
patient narratives
qualitative
url https://www.mdpi.com/1718-7729/28/4/249
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