Summary: | 碩士 === 國立臺灣大學 === 分子醫學研究所 === 97 === The purpose of this study was to investigate the parental stress and rearing practice of mothers of children with inherited metabolic disease and to explore the related facters. Study subjects consisted of 64 mothers of children with inherited metabolic disease. They were all recruited by purposive sampling. The data were collected by questionnaires, including: (1) the demographic data of the children and mother, (2) the condition of dietary control, (3) parental stress scale, and (4) the maternal rearing practice scale.
The major findings of study are as follows:
1. Parental stress for mothers of children with inherited metabolic disease was in order: the stress from parental care, the stress from disable child, and the stress from irregular relationship between parents and children. And the order of item score was: (1) There are many things bothered me. (2) It takes a lot of my livelihood. (3) Have a request in doing or not doing something to their children.
2. The parental stress and mother’s age had significant negative correlation: the older mother had the lower parental stress. In dietary control, the better dietary control of sick children and the lower parental stress of mothers were correlated.
3. In maternal rearing practice, the mother had more nonintrusiveness rearing practice for younger sick children. In educational background, the mother of college education would take more democratic rearing practice.
4. The overall parental stress and nonintrusivness rearing practice had positive correlation. Mothers taking more nonintrusivness rearing practice had the larger parental stress. The nonintrusivness rearing practice had significant positive correlation with suffering parental stress. Good care and democratic rearing practice had noticeable negative correlation.
5. In multiple regression analysis, dietary control had negative influence on overall parental stress. Children with worse dietary control the mother had the higher parental stress.
6. Rearing practice had impact on maternal stress. Mothres taking more nonintrusivness rearing practice had larger parental stress. Mothers taking more democratic rearing practice had lower parental stress. In another word, the more often taking nonintrusivness rearing practice the larger of maternal stress. On the contrary, the more often taking democratic rearing practice the lower of maternal stress.
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