| Summary: | 博士 === 高雄醫學大學 === 護理學研究所 === 98 === Cleft lip and palate is one of the common congenital defects in Taiwan. Significant advances have been made in our understanding of Cleft Lip and Palate (CLP) specific physical and psychosocial problems. The possible problems and challenges actually experienced by adolescents with CLP have not been done. The main purpose of this study was to explore the meaning of lived experience in adolescents with CLP in Taiwan.
From humanistic nursing perspective, a qualitative research design, hermeneutics phenomenology, was adopted, using depth interviews with participants who were selected by purposive sampling and snowball method. A total of 11 informants participated in this study, after clarifying pre-understanding, the interviews were transcribed and a hermeneutical circle analysis of their thematic contents were carried out.
The process of inquiry included 11 stories and 6 themes were summarized from informants’ feeling and thoughts of living with cleft lip and palate. The six themes were (1) being with kinship; (2) being with defect of cleft lip and palate; (3) being with experience of stigma; (4) being with predicament; (5) being with meanings of life; (6) being with worries. The meaning of lived experience reveals as “see through the gaze: being with resoluteness” and consists of three dimensions: (1) The fact of being thrown: the being with kinship − being accepted or excluded by primary family; (2) The encounter with gaze: the being with breakdown − the alienation or assimilation with others; (3) The possibility of future planning: the co-existing with cleft lip and palate − making decision in the predicament of being.
The findings provide evidence-based data to help nursing professionals supply intersubjectivity and suitable pre-understanding of nursing care for client with visible defect and improve the quality of care.
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