Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy

碩士 === 國立高雄大學 === 運動健康與休閒學系碩士班 === 98 === This study investigated quality of life (QOL), parental stress and related factors in parents with children suffering from cerebral palsy (PCCPs) and attempted to assess their relationship with regard to the severity of a child’s motor disability. Using a ca...

Full description

Bibliographic Details
Main Authors: Pei-chi Wu, 吳姵錡
Other Authors: Hsiu-Hua Pai
Format: Others
Language:zh-TW
Published: 2010
Online Access:http://ndltd.ncl.edu.tw/handle/50175937645564990011
id ndltd-TW-098NUK05420008
record_format oai_dc
spelling ndltd-TW-098NUK054200082015-10-13T18:49:19Z http://ndltd.ncl.edu.tw/handle/50175937645564990011 Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy 腦性麻痺孩童父母親生活品質、親職壓力及其相關因素之研究 Pei-chi Wu 吳姵錡 碩士 國立高雄大學 運動健康與休閒學系碩士班 98 This study investigated quality of life (QOL), parental stress and related factors in parents with children suffering from cerebral palsy (PCCPs) and attempted to assess their relationship with regard to the severity of a child’s motor disability. Using a case-control study design, data were collected primarily through the use of survey questionnaires. In total, 147 PCCPs as well as 143 parents of healthy children participated in the study. Demographic data including children’s age, sex and the parents’ age, sex, residence and education were also compared with those of the study group. Measurement instruments for the study included the Quality of Life Scale (WHOQOL-BREF), Parental Stress Scales (PSI/SF). Also, Gross Motor Function Classification System (GMFCS) was used for the children with cerebral palsy. The basic information of the children and parents focused upon: severity of motor disability, related diseases, rehabilitation, and frequency of parents asking for related support system. The data were analyzed with the SPSS 14.0Windows statistical package. The results of the study indicated significantly worsened QOL and parental stress was more likely to be observed in PCCPs than in comparisons to the parents of healthy children. Specifically, a negative correlation between QOL and parental stress was noted in PCCPs. Also, QOL and parental stress were significantly correlated with the severity of a child’s motor disability. They were also reported physical problems, including tenderness over lower back, upper back and wrist sprain. The PCCPs’ important supporter is spouse, other families and therapists. The predictor of QOL and parental stress is the severity of a child’s motor disability, overall QOL, general health and household income. The QOL and parental stress of parents of children is different from those who have a healthy child. Different coping strategies and psychosocial programs must be designed and implemented to decrease the burden of care. Health professionals have a role to assist families with information needs to prepare for key periods in the lives of their children with children. Hsiu-Hua Pai 白秀華 2010 學位論文 ; thesis 135 zh-TW
collection NDLTD
language zh-TW
format Others
sources NDLTD
description 碩士 === 國立高雄大學 === 運動健康與休閒學系碩士班 === 98 === This study investigated quality of life (QOL), parental stress and related factors in parents with children suffering from cerebral palsy (PCCPs) and attempted to assess their relationship with regard to the severity of a child’s motor disability. Using a case-control study design, data were collected primarily through the use of survey questionnaires. In total, 147 PCCPs as well as 143 parents of healthy children participated in the study. Demographic data including children’s age, sex and the parents’ age, sex, residence and education were also compared with those of the study group. Measurement instruments for the study included the Quality of Life Scale (WHOQOL-BREF), Parental Stress Scales (PSI/SF). Also, Gross Motor Function Classification System (GMFCS) was used for the children with cerebral palsy. The basic information of the children and parents focused upon: severity of motor disability, related diseases, rehabilitation, and frequency of parents asking for related support system. The data were analyzed with the SPSS 14.0Windows statistical package. The results of the study indicated significantly worsened QOL and parental stress was more likely to be observed in PCCPs than in comparisons to the parents of healthy children. Specifically, a negative correlation between QOL and parental stress was noted in PCCPs. Also, QOL and parental stress were significantly correlated with the severity of a child’s motor disability. They were also reported physical problems, including tenderness over lower back, upper back and wrist sprain. The PCCPs’ important supporter is spouse, other families and therapists. The predictor of QOL and parental stress is the severity of a child’s motor disability, overall QOL, general health and household income. The QOL and parental stress of parents of children is different from those who have a healthy child. Different coping strategies and psychosocial programs must be designed and implemented to decrease the burden of care. Health professionals have a role to assist families with information needs to prepare for key periods in the lives of their children with children.
author2 Hsiu-Hua Pai
author_facet Hsiu-Hua Pai
Pei-chi Wu
吳姵錡
author Pei-chi Wu
吳姵錡
spellingShingle Pei-chi Wu
吳姵錡
Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
author_sort Pei-chi Wu
title Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
title_short Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
title_full Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
title_fullStr Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
title_full_unstemmed Quality of Life , Parental Stress and Related Factors in Parents with Children suffering from Cerebral Palsy
title_sort quality of life , parental stress and related factors in parents with children suffering from cerebral palsy
publishDate 2010
url http://ndltd.ncl.edu.tw/handle/50175937645564990011
work_keys_str_mv AT peichiwu qualityoflifeparentalstressandrelatedfactorsinparentswithchildrensufferingfromcerebralpalsy
AT wúpèiqí qualityoflifeparentalstressandrelatedfactorsinparentswithchildrensufferingfromcerebralpalsy
AT peichiwu nǎoxìngmábìháitóngfùmǔqīnshēnghuópǐnzhìqīnzhíyālìjíqíxiāngguānyīnsùzhīyánjiū
AT wúpèiqí nǎoxìngmábìháitóngfùmǔqīnshēnghuópǐnzhìqīnzhíyālìjíqíxiāngguānyīnsùzhīyánjiū
_version_ 1718037795172253696