The hospice nurses’ experiences of caring the terminally ill patients’ self-perceived burden: a hermeneutics perspective

• Main Authors: Teng, Wen-Chang, 鄧文章
• Other Authors: Li, Pei-Yi
• Format: Others
• Language: zh-TW
• Published: 2015
• Online Access: http://ndltd.ncl.edu.tw/handle/17962521569298926257

博士 === 國立臺灣師範大學 === 教育心理與輔導學系 === 104 === Purpose. In Chinese culture, the caring is the task of family members. When the patients felt self-perceived burden (SPB), it may influence the family’s emotion. And also, it may influence the nurses’ caring task. The aim of this research is to investigate the caring experience of hospice nurse while the terminally ill patients suffered the SPB. Method. Based on the hermeneutics perspective, semi-structure interview was used to gather the experiences of 4 hospice nurses (worked in hospice around 5-13 years). These interviews (2-3 times each subject, about 60-90 min each interview) were transcribed and analyzed by Ricoeur’s hermeneutics strategies. Results. For hospice nurses’ experiences, the themes about SPB include “SPB is the background of Chinese culture”, “SPB is a subjective feeling of pressure about being cared”, “SPB comes from the anxiety of the clasped of relationship, not just the physical pain or death anxiety”. The themes about the hospice nurses’ inner and coping experiences of caring SPB are “the caring of SPB triggers nurses’ personal experiences and emotional arousal”, “the coping strategies which based on the nurses’ personal experiences are varied and unique”, “nurses are active in learning by the personal experiences and emotion aroused”. And the themes of the relation between the hospice nurses and SPB are “the broken and struggle of the professional roles and the self”, “the conflict and balance of professional roles and the self”, and “the deeply nursing companion based the infusion of professional roles and the self”. Conclusion. The findings from this research suggest (1) the nursing training may bridge the professional knowledge and the personal experience, (2) clinical or counseling psychologists and social workers may more involve in hospice teamwork, (3) when patients diagnosed cancer may be the time to concern the SPB, (4) the psychological treatment about SPB may be the emotional contact between the patients and their caregivers, and the meaning reconstruction about their relationship and the caring experience. There are also limitations and suggestions for further research.