| Summary: | 碩士 === 國立臺北護理健康大學 === 長期照護研究所 === 106 === Purpose：Myasthenia gravis is a chronic disease with fluctuating muscle weakness symptoms.The patients suffer from significant effect on their physical state, psychological status, daily life, social function and participation. The diseases can not be cured but can only be alleviated, it require long-term follow-up or treatment, and.the pressure on patients and their families in the face of the disease. However, in the same way of disease and stress, the pressure of patients is different depending on the mode of treatment or resilience. In the past, there was not much research on the stress and resilience of patients with myasthenia gravis. Researchers are looking forward to providing references for clinical research and medical staff and assisting patients to adapt to the disease positively.
Methods：This study aims to explore the relationship among stressor, social support and resilience in patients with myasthenia gravis, and to explore the moderation function of social support.This is a cross-sectional and convenience sampling study. Data for this study were collected from patients diagnosed with myasthenia gravis and selected in the neurology clinic or hospitalized department in medical center in Taipei. The study was conductedfrom May 1 to August 5.There are 150 valid questionnaires collected. Data collection is based on structured questionnaire with reliability and validity of standard tools. The questionnaires consisted of six components, including:the basic demographic characteristics of patients with myasthenia gravis; the disease characteristics; health status scale includes: MGFA Clinical Classification, MGFA Post-Intervention Status, Quantitative Myasthenia Gravis score, and Conscious Health Status(15-item Myasthenia Gravis Quality of Life Questionnaire); the Perceived Stress Scale ; the Medical Outcomes Study Social Support Scale Medical Outcomes Study; The Connor-Davidson Resilience Scale.
Results：In this study, statistical software SPSS 21.0 was used for statistical analysis. The buffer effect of social support on the negative impact of stressors on resilience was examined by bivariate analysis, Pearson Product-Moment Correlationcoefficient, and hierarchical regression analysis. The hierarchical regression analysis showed that：Under the control of the basic population characteristics and disease characteristics of variable, the source of informal and formal social support (family, friends, medical staff, caring cadres of support group) on the total variation of resilience explained 46.0%, 47.3%, 48.5% and 45.7%, respectively. The direct effect of stressors and informal and formal social support (family, friends, medical staff and patient care cadres) on resilience is significant, but the buffer effect of social support on the negative impact of stressors on resilience has not been confirmed.
Conclusions：The results of this study can provide clinical research and medical staff as a reference for the medical care of myasthenia gravis, assist patients with myasthenia gravis to adapt to the disease and enhance resilience, according to the results of the study for practical advice：First,enhance informal and formal social support to assist patients with myasthenia gravis to enhance resilience and to adapt positively to the disease. Second, to provide clinical reference to patients with myasthenia gravis, medical care planning. Third, to provide patients with myasthenia and their families to ask for assistance timely for reference.
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