The voice of children with cerebral palsy (CP) and their mothers in Saudi Arabia

This research reports the study conducted in Saudi Arabia, which aimed to explore: 1) the perception of the term CP with CP children and their mothers, 2) the implication of the meaning for mothers of children with CP, 3) the experiences of being a child with CP in Saudi Arabia. A qualitative approa...

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Bibliographic Details
Main Author: Madi, Sanaa
Published: University of Brighton 2014
Subjects:
610
Online Access:https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.633463
Description
Summary:This research reports the study conducted in Saudi Arabia, which aimed to explore: 1) the perception of the term CP with CP children and their mothers, 2) the implication of the meaning for mothers of children with CP, 3) the experiences of being a child with CP in Saudi Arabia. A qualitative approach was taken using critical ethnography methodology, informed by Bronfenbrenner's (1989, 1992 & 2005) ecological theory framework. Data were collected in two phases: Phase one involved two focus group interviews with 6 mothers of children with CP and follow up semi-structured interviews with three of them. The second phase of the research focused on interviews with children with CP. Semi-structured interviews were conducted with 9 children ranging between 5-17 years of age. Talking Mats, an innovative communication tool, was used to enable two children with difficult verbal communication to give their views.