Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa
Background: Limited research has been conducted on explanations and understandings of biobanking for future genomic research in African contexts with low literacy and limited healthcare access. We report on the findings of a sub-study on participant understanding embedded in a multi-disease communit...
Main Authors: | Gareta, D. (Author), Gumede, D. (Author), Gunda, R. (Author), Koole, O. (Author), Luthuli, M. (Author), Ngwenya, N. (Author), Seeley, J. (Author), Siedner, M.J (Author), Wong, E.B (Author) |
---|---|
Format: | Article |
Language: | English |
Published: |
BioMed Central Ltd
2022
|
Subjects: | |
Online Access: | View Fulltext in Publisher |
Similar Items
-
Balancing the local and the universal in maintaining ethical access to a genomics biobank
by: Catherine Heeney, et al.
Published: (2017-12-01) -
REXIC project: retrospective cross-sectional study of documentation of informed consent for research biobanking in a public research and teaching hospital
by: Marta Nobile, et al.
Published: (2013-07-01) -
Broad consent for biobanks is best – provided it is also deep
by: Rasmus Bjerregaard Mikkelsen, et al.
Published: (2019-10-01) -
Public awareness of and attitudes towards research biobanks in Latvia
by: S. Mezinska, et al.
Published: (2020-07-01) -
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research
by: Natalie T. Boutin, et al.
Published: (2016-06-01)