Data Protection in Healthcare Research: Medical Students' Knowledge and Behavior

Healthcare research involves handling personal health information. Information security policies are implemented in research institutions to ensure data subjects' rights but are not always respected due to researchers' neglect or unawareness. This paper is part of an action research projec...

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Bibliographic Details
Main Authors: El Helou, E. (Author), Farah, M. (Author), Helou, S. (Author), Tufenkji, P. (Author)
Format: Article
Language:English
Published: NLM (Medline) 2022
Subjects:
Online Access:View Fulltext in Publisher
LEADER 01821nam a2200229Ia 4500
001 10.3233-SHTI220671
008 220718s2022 CNT 000 0 und d
020 |a 18798365 (ISSN) 
245 1 0 |a Data Protection in Healthcare Research: Medical Students' Knowledge and Behavior 
260 0 |b NLM (Medline)  |c 2022 
856 |z View Fulltext in Publisher  |u https://doi.org/10.3233/SHTI220671 
520 3 |a Healthcare research involves handling personal health information. Information security policies are implemented in research institutions to ensure data subjects' rights but are not always respected due to researchers' neglect or unawareness. This paper is part of an action research project at Saint Joseph University in Lebanon aiming to increase researchers' compliance with the university's information security policy. An anonymous online questionnaire was administered to medical students to evaluate their knowledge and behavior regarding patient data handling in research projects. 38 responses were collected. Results show that most students collect patient data for research, and are frequently not aware of, and do not comply with, the existing information security policy. We also found correlations between low knowledge and non-compliant behaviors including clicking on links from unknown senders, leaving computers unattended, and sharing data insecurely. To address these issues, we plan to implement various Information Security Awareness interventions and compare their effectiveness. 
650 0 4 |a behavior 
650 0 4 |a Data protection 
650 0 4 |a information security 
650 0 4 |a knowledge 
650 0 4 |a research 
700 1 |a El Helou, E.  |e author 
700 1 |a Farah, M.  |e author 
700 1 |a Helou, S.  |e author 
700 1 |a Tufenkji, P.  |e author 
773 |t Studies in health technology and informatics