Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project

by Fenella J. Gill, Catherine Pienaar, Tanya Jones
Published 2021-08-01

Co-creation and prototyping of an intervention focusing on health literacy in management of malaria at community-level in Ghana

by Millicent Addai Boateng, Eter Agyei-Baffour, Sanne Angel, Ofeibea Asare, Benjamin Prempeh, Ulrika Enemark
Published 2021-08-01

Forming a Parent And Clinician Team (PACT) in a cohort of healthy children

by Shelley M. Vanderhout, Catherine S. Birken, Maria Zaccaria Cho, Jonathon L. Maguire
Published 2021-06-01

The value of involving patients and public in health services research and evaluation: a qualitative study

by Pooja Saini, Shaima M. Hassan, Esmaeil Khedmati Morasae, Mark Goodall, Clarissa Giebel, Saiqa Ahmed, Anna Pearson, Lesley M. Harper, Jane Cloke, Jenny Irvine, Mark Gabbay
Published 2021-06-01

Empowering Maasai women behind the camera: Photovoice as a tool for trachoma control

by Tara B. Mtuy, Jeremiah Mepukori, Joseph Lankoi, Shelley Lees
Published 2021-07-01

Community engagement and involvement in Ghana: conversations with community stakeholders to inform surgical research

by Karolin Kroese, Bernard Appiah Ofori, Darling Ramatu Abdulai, Mark Monahan, Angela Prah, Stephen Tabiri
Published 2021-07-01

Collaboration with people with lived experience of prison: reflections on researching cancer care in custodial settings

by Renske Visser, Alyce-Ellen Barber, Anthony X, Sue Wheatcroft, Philip Mullen, Jo Armes
Published 2021-06-01

Co-designing strategies to support patient partners during a scoping review and reflections on the process: a commentary

by Tamara L. McCarron, Fiona Clement, Jananee Rasiah, Karen Moffat, Tracy Wasylak, Maria Jose Santana
Published 2021-05-01

Involving older adults in technology research and development discussions through dialogue cafés

by Anne Lund, Torhild Holthe, Liv Halvorsrud, Dag Karterud, Adele Flakke Johannessen, Hilde Margrethe Lovett, Erik Thorstensen, Flávia Dias Casagrande, Evi Zouganeli, Reidun Norvoll, Ellen Marie Forsberg
Published 2021-05-01

Making the patient voice heard in a research consortium: experiences from an EU project (IMI-APPROACH)

by Jane Taylor, Sjouke Dekker, Diny Jurg, Jon Skandsen, Maureen Grossman, Anne-Karien Marijnissen, Christoph Ladel, Ali Mobasheri, Jon Larkin, Harrie Weinans, Irene Kanter-Schlifke, on behalf of the APPROACH research consortium and APPROACH Principal Investigators
Published 2021-05-01

Development of the patient-oriented research curriculum in child health (PORCCH)

by Colin Macarthur, Catharine M. Walsh, Francine Buchanan, Aliza Karoly, Linda Pires, Graham McCreath, Nicola L. Jones
Published 2021-05-01

Involving elderly research participants in the co-design of a future multi-generational cohort study

by Jack S. Nunn, Merrin Sulovski, Jane Tiller, Bruce Holloway, Darshini Ayton, Paul Lacaze
Published 2021-05-01

Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision-makers: results of a scoping review

by Noreen Frisch, Pat Atherton, Mary M. Doyle-Waters, Martha L. P. MacLeod, Anastasia Mallidou, Vanessa Sheane, John Ward, Jinelle Woodley
Published 2020-02-01

A community-driven and evidence-based approach to developing mental wellness strategies in First Nations: a program protocol

by Melody Morton Ninomiya, Ningwakwe (Priscilla) George, Julie George, Renee Linklater, Julie Bull, Sara Plain, Kathryn Graham, Sharon Bernards, Laura Peach, Vicky Stergiopoulos, Paul Kurdyak, Gerald McKinley, Peter Donnelly, Samantha Wells
Published 2020-02-01

Experiences of an HCV Patient engagement group: a seven-year journey

by UNC Chapel Hill HCV Patient Engagement Group, Scott Kixmiller, Anquenette P. Sloan, Summer Wadsworth, Finton Brown, Lourdes Chaney, Larry Houston, Kim Thomas
Published 2021-01-01

Engaging with diverse audiences to raise awareness about childhood eczema: reflections from two community events

by Anna Gilbertson, Matthew J. Ridd, Eileen Sutton, Lyn Liddiard, Julie Clayton, Amanda Roberts, Jonathan Chan, Alisha Bhanot, Rosie Wellesley, Shoba Dawson
Published 2021-01-01

Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review

by Claire Ludwig, Ian D. Graham, Josee Lavoie, Wendy Gifford, Dawn Stacey
Published 2021-01-01

The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

by Nao Hamakawa, Atsushi Kogetsu, Moeko Isono, Chisato Yamasaki, Shirou Manabe, Toshihiro Takeda, Kazumasa Iwamoto, Tomoya Kubota, Joe Barrett, Nathanael Gray, Alison Turner, Harriet Teare, Yukie Imamura, Beverley Anne Yamamoto, Jane Kaye, Michihiro Hide, Masanori P. Takahashi, Yasushi Matsumura, Muhammad Kassim Javaid, Kazuto Kato
Published 2021-02-01

Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

by Kufre Joseph Okop, Kathy Murphy, Estelle Victoria Lambert, Kiya Kedir, Hailemichael Getachew, Rawleigh Howe, Jean Berchmans Niyibizi, Selemani Ntawuyirushintege, Charlotte Bavuma, Stephen Rulisa, Stephen Kasenda, Effie Chipeta, Christopher Bunn, Amelia C. Crampin, Gertrude Chapotera, Abby C. King, Ann Banchoff, Sandra J. Winter, Naomi S. Levitt
Published 2021-02-01

A generative co-design framework for healthcare innovation: development and application of an end-user engagement framework

by M. Bird, M. McGillion, E. M. Chambers, J. Dix, C. J. Fajardo, M. Gilmour, K. Levesque, A. Lim, S. Mierdel, C. Ouellette, A. N. Polanski, S. V. Reaume, C. Whitmore, N. Carter
Published 2021-03-01