Patient and Family Preferences on Health System-Led Direct Contact for Cascade Screening

by Nora B. Henrikson, Paula Blasi, Marlaine Figueroa Gray, Brooks T. Tiffany, Aaron Scrol, James D. Ralston, Stephanie M. Fullerton, Catherine Y. Lim, John Ewing, Kathleen A. Leppig
Published 2021-06-01

Feasibility and Assessment of a Cascade Traceback Screening Program (FACTS): Protocol for a Multisite Study to Implement and Assess an Ovarian Cancer Traceback Cascade Testing Prog...

by Anna DiNucci, Nora B. Henrikson, M. Cabell Jonas, Sundeep Basra, Paula Blasi, Jennifer Brown, Edward D. Esplin, Dina Hassen, Jing Hao, Yirui Hu, Tracey Klinger, Ilene Ladd, Kathleen Leppig, Meredith Lewis, Michelle Meyer, Steven Ney, Arvind Ramaprasan, Katrina Romagnoli, Zachary Salvati, Aaron Scrol, Rachel Schwiter, Leigh Sheridan, Brinda Somasundaram, Pim Suwannarat, Jennifer K. Wagner, Alanna K. Rahm
Published 2021-06-01

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience

by Robyn Fossey, David Kochan, Erin Winkler, Joel E. Pacyna, Janet Olson, Stephen Thibodeau, John J. Connolly, Margaret Harr, Meckenzie A. Behr, Cynthia A. Prows, Beth Cobb, Melanie F. Myers, Nancy D. Leslie, Bahram Namjou-Khales, Hila Milo Rasouly, Julia Wynn, Alexander Fedotov, Wendy K. Chung, Ali Gharavi, Janet L. Williams, Lynn Pais, Ingrid Holm, Sharon Aufox, Maureen E. Smith, Aaron Scrol, Kathleen Leppig, Gail P. Jarvik, Georgia L. Wiesner, Rongling Li, Mary Stroud, Jordan W. Smoller, Richard R. Sharp, Iftikhar J. Kullo
Published 2018-01-01

Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network

by John A. Lynch, Richard R. Sharp, Sharon A. Aufox, Sarah T. Bland, Carrie Blout, Deborah J. Bowen, Adam H. Buchanan, Colin Halverson, Margaret Harr, Scott J. Hebbring, Nora Henrikson, Christin Hoell, Ingrid A. Holm, Gail Jarvik, Iftikhar J. Kullo, David C. Kochan, Eric B. Larson, Amanda Lazzeri, Kathleen A. Leppig, Jill Madden, Maddalena Marasa, Melanie F. Myers, Josh Peterson, Cynthia A. Prows, Alanna Kulchak Rahm, James Ralston, Hila Milo Rasouly, Aaron Scrol, Maureen E. Smith, Amy Sturm, Kelsey Stuttgen, Georgia Wiesner, Marc S. Williams, Julia Wynn, Janet L. Williams
Published 2020-05-01