What motivates participation in HIV cure trials? A call for real-time assessment to improve informed consent

by Holly L. Peay, Gail E. Henderson
Published 2015-01-01

Parallel but connected: Nuances of conducting behavioral and social science research alongside ethically challenging HIV remission trials

by Gail E. Henderson, Stuart Rennie, Amy Corneli, Karen Meagher, R. Jean Cadigan, Eugène Kroon, Jintanat Ananworanich, Holly L. Peay
Published 2020-09-01

Using Social Media to Conduct Outreach and Recruitment for Expanded Newborn Screening

by Jamie Guillory, Alyssa Jordan, Ryan S. Paquin, Jessica Pikowski, Stephanie McInnis, Amarachi Anakaraonye, Holly L. Peay, Megan A. Lewis
Published 2020-05-01

Patients’ and caregivers’ maximum acceptable risk of death for non‐curative gene therapy to treat Duchenne muscular dystrophy

by Holly L. Peay, Ryan Fischer, Brennan Mange, Ryan S. Paquin, Edward C. Smith, Alesia Sadosky, Leo Russo, Valeria Ricotti, Colin Rensch, Carl Morris, Amy Strong Martin, Annie Ganot, Katherine Beaverson, Carol Mansfield
Published 2021-05-01

Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best–worst scaling experiment in caregivers and adult patients

by Ryan S. Paquin, Ryan Fischer, Carol Mansfield, Brennan Mange, Katherine Beaverson, Annie Ganot, Amy Strong Martin, Carl Morris, Colin Rensch, Valeria Ricotti, Leo J. Russo, Alesia Sadosky, Edward C. Smith, Holly L. Peay
Published 2019-05-01

Outreach to new mothers through direct mail and email: recruitment in the Early Check research study

by Ryan S. Paquin, Megan A. Lewis, Blake A. Harper, Rebecca R. Moultrie, Angela Gwaltney, Lisa M. Gehtland, Holly L. Peay, Martin Duparc, Melissa Raspa, Anne C. Wheeler, Cynthia M. Powell, Nancy M. P. King, Scott M. Shone, Donald B. Bailey Jr
Published 2021-05-01

A Voluntary Statewide Newborn Screening Pilot for Spinal Muscular Atrophy: Results from Early Check

by Katerina S. Kucera, Jennifer L. Taylor, Veronica R. Robles, Kristin Clinard, Brooke Migliore, Beth Lincoln Boyea, Katherine C. Okoniewski, Martin Duparc, Catherine W. Rehder, Scott M. Shone, Zheng Fan, Melissa Raspa, Holly L. Peay, Anne C. Wheeler, Cynthia M. Powell, Donald B. Bailey, Lisa M. Gehtland
Published 2021-03-01

Application of a framework to guide genetic testing communication across clinical indications

by Miranda L. G. Hallquist, Eric P. Tricou, Kelly E. Ormond, Juliann M. Savatt, Curtis R. Coughlin, W. Andrew Faucett, Laura Hercher, Howard P. Levy, Julianne M. O’Daniel, Holly L. Peay, Melissa Stosic, Maureen Smith, Wendy R. Uhlmann, Hannah Wand, Karen E. Wain, Adam H. Buchanan
Published 2021-04-01