The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics

by Jessica Bohonowych, Jennifer Miller, Shawn E. McCandless, Theresa V. Strong
Published 2019-09-01

Suicidality in individuals with Prader-Willi syndrome: a review of registry survey data

by Analise Peleggi, Jessica Bohonowych, Theresa V. Strong, Lauren Schwartz, Soo-Jeong Kim
Published 2021-09-01

Variability and change over time of weight and BMI among adolescents and adults with Prader-Willi syndrome: a 6-month text-based observational study

by Caroline J. Vrana-Diaz, Priya Balasubramanian, Nathalie Kayadjanian, Jessica Bohonowych, Theresa V. Strong
Published 2020-09-01

Characteristics and relationship between hyperphagia, anxiety, behavioral challenges and caregiver burden in Prader-Willi syndrome.

by Nathalie Kayadjanian, Caroline Vrana-Diaz, Jessica Bohonowych, Theresa V Strong, Josée Morin, Diane Potvin, Lauren Schwartz
Published 2021-01-01