Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information.

by Ruth H Keogh, Diana Bilton, Rebecca Cosgriff, Dominic Kavanagh, Oliver Rayner, Philip M Sedgwick
Published 2019-01-01

Erythrocyte Encapsulated Thymidine Phosphorylase for the Treatment of Patients with Mitochondrial Neurogastrointestinal Encephalomyopathy: Study Protocol for a Multi-Centre, Multip...

by Bridget E. Bax, Michelle Levene, Murray D. Bain, Lynette D. Fairbanks, Massimiliano Filosto, Sema Kalkan Uçar, Thomas Klopstock, Cornelia Kornblum, Hanna Mandel, Shamima Rahman, Agathe Roubertie, Mauro Scarpelli, Philip M. Sedgwick, Moshe Baru, Marcia Sellos-Moura, Jeanie Price, Patrick Horn, Niranjanan Nirmalananthan
Published 2019-07-01