Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model.

by Henriette Markwart, Franziska Bomba, Ingo Menrath, Katja Brenk-Franz, Gundula Ernst, Ute Thyen, Andrea Hildebrandt, Silke Schmidt
Published 2020-01-01

Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

by Catherine Arnaud, Carine Duffaut, Jérôme Fauconnier, Silke Schmidt, Kate Himmelmann, Marco Marcelli, Lindsay Pennington, Joaquim Alvarelhão, Chirine Cytera, Marion Rapp, Virginie Ehlinger, Ute Thyen
Published 2021-06-01

Minimal Associations Between Clinical Data and Children's Self-Reported Health-Related Quality of Life in Children With Chronic Conditions—A Cross-Sectional Study

by Kathrin I. Fischer, Dana Barthel, Christiane Otto, Ulrike Ravens-Sieberer, Ute Thyen, Marcus Klein, Otto Walter, Matthias Rose, Matthias Rose, Sandra Nolte, Sandra Nolte
Published 2019-02-01

Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference pop...

by Marion Rapp, Esther Mueller-Godeffroy, Peter Lee, Robert Roehle, Baudewijntje P. C. Kreukels, Birgit Köhler, Anna Nordenström, Claire Bouvattier, Ute Thyen, on behalf of the dsd-LIFE group
Published 2018-04-01

Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study

by Kathrin I. Fischer, Felix H. Fischer, Dana Barthel, Christiane Otto, Ute Thyen, Marcus Klein, Otto Walter, Ulrike Ravens-Sieberer, Matthias Rose, Matthias Rose, Sandra Nolte, Sandra Nolte
Published 2020-01-01

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

by Robert Röhle, Katharina Gehrmann, Maria Szarras-Czapnik, Hedi Claahsen-van der Grinten, Catherine Pienkowski, Claire Bouvattier, Peggy Cohen-Kettenis, Anna Nordenström, Ute Thyen, Birgit Köhler, on behalf of the dsd-LIFE group
Published 2017-08-01

Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)

by Ute Thyen, Till Ittermann, Steffen Flessa, Holger Muehlan, Wiebke Birnbaum, Marion Rapp, Louise Marshall, Maria Szarras-Capnik, Claire Bouvattier, Baudewijntje P. C. Kreukels, Anna Nordenstroem, Robert Roehle, Birgit Koehler, on behalf of the dsd-LIFE group
Published 2018-07-01