An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States

by Therese Conner, Francesca Cook, Vivian Fernandez, Karen Rascati, Vanessa Rangel-Miller
Published 2019-02-01

Characterization and utilization of an international neurofibromatosis web-based, patient-entered registry: An observational study.

by Mindell Seidlin, Robert Holzman, Pamela Knight, Bruce Korf, Vanessa Rangel Miller, David Viskochil, Annette Bakker, Children’s Tumor Foundation
Published 2017-01-01